The other shoe is beginning to drop and we can see it coming.  It's like one of those dreams where you're trying to run away but you're stuck in place…

Alright,  I just got off the phone with Lizze.  Basically,  Gavin crashed on the car ride up to have his monthly antibody infusion. His heart rate was all over the…

On August 28th, Gavin returns to the Cleveland Clinic for most of the day.  In the morning,  Gavin will have skin biopsies done. My understanding is that they want tissue…

I wanted to update all of you on Gavin current condition in regards to his autonomic disorder.  Gavin just had his 3rd of 4 blood draws for this week.  Incidentally, …

Gavin should be coming home at some point today.  We will know more around 8am.  Elliott is beside himself with excitement over the thought of seeing his big brother. My…

Gavin should finally get released today. I don't know what time though. It will be really nice to have our family whole again. Gavin has had a rough 6 days…

Gavin will not be coming home today as previously thought.  He will however, be home tomorrow, assuming all goes well. He will be receiving an MRI,  either while there or…