I spoke with Dr. Moodley's office at the Cleveland Clinic. We were originally going to be taking him to the ER at Cleveland. However, as we are getting ready to…
We just got home from Gavin's martial arts promotion. Gavin did really well and I will have pictures up when I can. Right now, we have a problem. It looks…
Lizze and Gavin are on their way home. For whatever reason, his infusion finished much faster than anticipated. His HR has not dropped below the mid 130's since at least…
Lizze just called me from Akron Children's Hospital and told me that Gavin's heart rate is so high that it keeps setting off the alarms. Right now, his resting heart…
I wanted to take a minute and update you all on how Gavin is doing, health wise. Since tightly controlling his fluid intake and starting his new meds, Gavin seems…
There was just a shift change here at Akron Children's Hospital. However, someone must be looking out for us because the doctor that just came on did his residency at…
We are at Akron Children's Hospital and they got Gavin back right away. During the trip Gavin's heart rate went down. When checked during intake it was 102 bpm. When…
We heard back from the wonderful Doctors at the Cleveland Clinic. They do not want him to make the trip to Cleveland unless Akron Children's Hospital transfers him directly. They…