Gavin has spent much of the day sleeping. He's acting disoriented and confused. Right now I'm hoping that he is not beginning an autonomic crisis. His blood pressure is probably…
The good news is that there is a chance that Gavin may come home tomorrow, if he continues to improve. We have also learned that he has been cleared by…
I wanted to let you all know that at some point Monday morning, the doctors and staff at Akron Children's Hospital are going to be meeting to discuss Gavin and…
Lizze and I met with Dr. Patti tonight and discussed Gavin. We also did some research while we were there. Things may have taken a turn and become a bit…
I'm so frustrated right now because I don't know what we are supposed to do with Gavin. He's showing the very same signs and symptoms that ended him up in…
This is one of those days days where I find myself overwhelmed and frustrated by all that goes into special needs parenting. As many of you know, I'm a father…
Yesterday, Gavin had his monthly antibody infusion. Everything was pretty routine until about 15 minutes into the car ride. Gavin began to enter an autonomic crisis. He became sick to…
I want to talk about something I called the domino effect. The domino effect is what I have begun referring to the fall out of some of Gavin's behavioral choices. …
