The boy who cried wolf

Lizze and I have noticed something about Gavin today that we hadn't noticed prior.  He seems to start complaining about his health problems, of which there are many, whenever he…

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Please keep Gavin in your thoughts

Last night,  Gavin was on the verge of an autonomic crisis.  Because we can never get reliable information from him,  we have come up with a system to help. The…

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Watching Gavin’s heart rate

Lizze and I got Gavin a watch that monitors his heart rate.  It's very simple to use.  All he has to do is simply touch the bezel. He sees his…

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Gavin is in pretty rough shape

Gavin has spent much of the day sleeping.  He's acting disoriented and confused.  Right now I'm hoping that he is not beginning an autonomic crisis. His blood pressure is probably…

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