When good news is frustrating
The good news is that there is a chance that Gavin may come home tomorrow, if he continues to improve. We have also learned that he has been cleared by…
The good news is that there is a chance that Gavin may come home tomorrow, if he continues to improve. We have also learned that he has been cleared by…
Gavin isn't doing so well right now. I don't have time to go into details at the moment. They are calling this a dysautonomic crisis. He's also experiencing a cardiac…
Please say a prayer once again for Gavin. We had to rush him tk the ER at Childrens due to what appears to be an autonomic crisis. He was laying…
Gavin has spent much of the day sleeping. He's acting disoriented and confused. Right now I'm hoping that he is not beginning an autonomic crisis. His blood pressure is probably…
It turns out that Lizze isn't sick because of her meds. Turns out that it's a stomach bug. How do I know this? That's easy, because Elliott is puking now…
I had a really hard time falling asleep last night. I ended up finally crashing around 5:30 AM and for those wondering, that puts me at a significant disadvantage going…
We had to make our way to the Cleveland Clinic yesterday for a Pediatric Neurology appointment. Gavin had a follow-up in regards to epilepsy and autonomic dysfunction. I already shared…
This is take two for this post cause the first one glitched out and disappeared. I'm gonna try to reproduce it as best I can. I played phone tag with…