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Please keep Gavin in your thoughts

Last night, Gavin was on the verge of an autonomic crisis. Because we can never get reliable information from him, we have come up with a system to help. The…

Akron Children’s Hospital may be in our future

Gavin is teetering on the edge of having to go to the hospital. He just got home from hanging out with Grandma and most likely over did it. The really…

Our 4th and final trip to @AkronChildrens this week is the most important yet

In but a few hours, we will be making the trip to the Akron Children's Hospital Heart Center. We will be meeting with Dr. Clark, one of the top pediatric…

Gavin was rushed to the ER at Akron Children’s Hospital

Please say a prayer once again for Gavin. We had to rush him tk the ER at Childrens due to what appears to be an autonomic crisis. He was laying…

Please keep Gavin in your thoughts…again

I fear that we are in the verge of another autonomic crisis. We are waiting to get his blood pressure meds refilled and so he's been out for about 3…

Watching Gavin’s heart rate

Lizze and I got Gavin a watch that monitors his heart rate. It's very simple to use. All he has to do is simply touch the bezel. He sees his…

The boy who cried wolf

Lizze and I have noticed something about Gavin today that we hadn't noticed prior. He seems to start complaining about his health problems, of which there are many, whenever he…

Medicating My Son: A peak behind the curtain

I wanted to give you all a peak behind the curtain, so to speak. Every Monday night, we have to refill Gavin's pill dispenser for the week. We go one…