Gavin is teetering on the edge of having to go to the hospital. He just got home from hanging out with Grandma and most likely over did it. The really…
Last night, Gavin was on the verge of an autonomic crisis. Because we can never get reliable information from him, we have come up with a system to help. The…
I want to talk about something I called the domino effect. The domino effect is what I have begun referring to the fall out of some of Gavin's behavioral choices. …
Yesterday, Gavin had his monthly antibody infusion. Everything was pretty routine until about 15 minutes into the car ride. Gavin began to enter an autonomic crisis. He became sick to…
Lizze and I got Gavin a watch that monitors his heart rate. It's very simple to use. All he has to do is simply touch the bezel. He sees his…
This is one of those days days where I find myself overwhelmed and frustrated by all that goes into special needs parenting. As many of you know, I'm a father…
I'm so frustrated right now because I don't know what we are supposed to do with Gavin. He's showing the very same signs and symptoms that ended him up in…
I fear that we are in the verge of another autonomic crisis. We are waiting to get his blood pressure meds refilled and so he's been out for about 3…