I wanted to let everyone know that despite the really rough start, Gavin's IVIG Infusion was successful. I want to thank his nurse for doing such an awesome job. With…
Gavin arrived home after a brief 7 hour stay in the ER. The CT scan came back clean, as did his blood work. He received fluids but there isn't much…
All good things come to an end. I know that sounds cliche but it's also true. Nothing lasts forever and that applies to the Lost and Tired family as well. …
We had a medication mixup. This post explains how things can happen, no matter how careful you are.
I just heard from Lizze. Gavin is hooked up to an IV and is receiving fluids. Apparently, they are going to do a head CT as well. This is the…
Gavin started having chest pain a short while ago. His heart rate was bouncing between 56bpm and about 130bpm. That's definitely not a good thing. We have begun making plans…
I mentioned the other night that we had some more concerning news about Gavin's autonomic issues. His specialist at the Cleveland Clinic decided that the pros outweighed the constant when…
I thought that it might be a good idea to bring everyone up speed on everything that is going on with Gavin. I've got a ton of new readers (thank…
