When Gavin goes through things like he did this past weekend, majority of the time there is nothing learned. Instead of finding clues as to why these things are happening, …
I made it back home for less than an hour before being called back to the hospital. Gavin's heart rate is back up again and Lizze wanted to make sure…
Lizze sent me home and I just arrived safe but exhausted. Gavin was sleeping and my back simply couldn't take staying there. Gavin's heart rate is switching off between high…
You would do not believe the impact that stress can have on the human body. Well, maybe you can. I mean, anyone that's a parent, let alone a special needs…
During our last appointment with Dr. Moodley at the Cleveland Clinic, there was a medication change that was scheduled to take place today. One of the treatments for Gavin's Autonomic…
Tonight we had a really bizarre occurrence that ended with me overwhelmed and freaking out. It started out with Gavin coming downstairs and asking if his vision getting blurry means…
I wanted to update everyone on a pretty significant change to Gavin's meds. One of the things that have been causing or contributing to Gavin's sleepiness in the mornings is…
I wanted to let everyone know that despite the really rough start, Gavin's IVIG Infusion was successful. I want to thank his nurse for doing such an awesome job. With…
