A significant change in Gavin’s Meds

I wanted to update everyone on a pretty significant change to Gavin's meds.  One of the things that have been causing or contributing to Gavin's sleepiness in the mornings is…

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Team Gavin: Medication Update

During our last appointment with Dr. Moodley at the Cleveland Clinic, there was a medication change that was scheduled to take place today. One of the treatments for Gavin's Autonomic…

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I’m worried sick about Gavin

Tonight we had a really bizarre occurrence that ended with me overwhelmed and freaking out.  It started out with Gavin coming downstairs and asking if his vision getting blurry means…

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