Autonomic Crisis: Update 7/15/2012 (3pm)
Gavin will not be coming home today as previously thought. He will however, be home tomorrow, assuming all goes well. He will be receiving an MRI, either while there or…
Gavin will not be coming home today as previously thought. He will however, be home tomorrow, assuming all goes well. He will be receiving an MRI, either while there or…
Gavin should finally get released today. I don't know what time though. It will be really nice to have our family whole again. Gavin has had a rough 6 days…
Gavin should be coming home at some point today. We will know more around 8am. Elliott is beside himself with excitement over the thought of seeing his big brother. My…
You would do not believe the impact that stress can have on the human body. Well, maybe you can. I mean, anyone that's a parent, let alone a special needs…
I wanted to update everyone on a pretty significant change to Gavin's meds. One of the things that have been causing or contributing to Gavin's sleepiness in the mornings is…
During our last appointment with Dr. Moodley at the Cleveland Clinic, there was a medication change that was scheduled to take place today. One of the treatments for Gavin's Autonomic…
Tonight we had a really bizarre occurrence that ended with me overwhelmed and freaking out. It started out with Gavin coming downstairs and asking if his vision getting blurry means…
I wanted to let everyone know that despite the really rough start, Gavin's IVIG Infusion was successful. I want to thank his nurse for doing such an awesome job. With…