I wanted to update all of you on Gavin current condition in regards to his autonomic disorder. Gavin just had his 3rd of 4 blood draws for this week. Incidentally, …
Alright, I just got off the phone with Lizze. Basically, Gavin crashed on the car ride up to have his monthly antibody infusion. His heart rate was all over the…
Gavin has been off his blood pressure for only a day and he has already crashed. This afternoon, he had an autonomic crisis. Basically, this means that his blood pressure…
I'm finally awake enough to string two coherent thoughts together. I just spoke to Lizze again and Gavin is doing better, in some regards. His fever appears to have finally…
I spoke with Lizze a little while ago. Apparently, the reason Gavin would leave tomorrow is because insurance will only pay for a 72 hour EEG. He may be transfered…
Gavin will not be coming home today as previously thought. He will however, be home tomorrow, assuming all goes well. He will be receiving an MRI, either while there or…
Gavin should finally get released today. I don't know what time though. It will be really nice to have our family whole again. Gavin has had a rough 6 days…
Gavin should be coming home at some point today. We will know more around 8am. Elliott is beside himself with excitement over the thought of seeing his big brother. My…
