Alright, I just got off the phone with Lizze. Basically, Gavin crashed on the car ride up to have his monthly antibody infusion. His heart rate was all over the…
Let me start by saying that I'm very grateful for everyone's concern. I think that it says a lot about our community when other wise strangers, can relate enough to…
When Gavin goes through things like he did this past weekend, majority of the time there is nothing learned. Instead of finding clues as to why these things are happening, …
Gavin has been off his blood pressure for only a day and he has already crashed. This afternoon, he had an autonomic crisis. Basically, this means that his blood pressure…
I made it back home for less than an hour before being called back to the hospital. Gavin's heart rate is back up again and Lizze wanted to make sure…
Lizze sent me home and I just arrived safe but exhausted. Gavin was sleeping and my back simply couldn't take staying there. Gavin's heart rate is switching off between high…
I'm finally awake enough to string two coherent thoughts together. I just spoke to Lizze again and Gavin is doing better, in some regards. His fever appears to have finally…
I spoke with Lizze a little while ago. Apparently, the reason Gavin would leave tomorrow is because insurance will only pay for a 72 hour EEG. He may be transfered…
