We're sitting here waiting and I noticed something was wrong with Lizze. Lizze is so stressed out that she's broken out in hives. He entire face and neck are covered.…
In a little while, I'll be taking Gavin to Akron Children's Hospital for his monthly IVIG infusion. This month, his dose is going to be bumped to 25mg (I believe). …
Gavin's been home for 2 full days now and we are already having a few issues. Gavin's not used to having a lot of rules. In our house, we have…
We have actually been for awhile now and are still waiting to go back. It appears that they are pretty busy at the moment. We have to wait for a…
I wanted to let everyone know that Gavin's IVIG Infusion went really well yesterday. Lizze's Mom reports that Gavin did really well behaviorally. He also physically tolerated the infusion pretty…
Lizze just called me from Akron Children's Hospital and told me that Gavin's heart rate is so high that it keeps setting off the alarms. Right now, his resting heart…
Lizze and Gavin are on their way home. For whatever reason, his infusion finished much faster than anticipated. His HR has not dropped below the mid 130's since at least…
Gavin has his IVIG infusion in the morning at Akron Children's Hospital. Lizze or myself was supposed to be taking him. Unfortunately, Lizze is not in a very good position…
