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Today didn’t go as planned

As with everything else in my life, today didn't go as planned. We were going to celebrate day two of Gavin's birthday and we did but with a some changes.…

I heard back from Gavin’s immunologist

I heard from Gavin's doctor this afternoon and I'm not surprised by the approach we're taking. Basically, Gavin's labs are messed up enough that we need to verify their accuracy.…

So Gavin started running a low grade fever tonight

It's been a really challenging day for about a million reasons. I was going to touch on some of those reasons but yet another issue has made itself known and…

Day 42: We’re still here

We're on day 42 of total COVID19 lockdown and I don't know, does that count as some kind of milestone? It probably should. 😂 It's been a pretty interesting day.…

There was drama but we recovered

Today was a sort of a mixed bag for the boys and I. We got off to a great start in the morning but then there was a shit ton…

I’m not even sure what to say anymore

I've been struggling today and I'm not entirely sure why. Recently, I've been in a pretty good place because everyone is safe, healthy and doing as well as can be…

My kids are disappointed but it’s out of my control

The boys don't have school today because their is a Halloween event instead. I don't necessarily agree with hosting an event in person whilst Ohio is logging nearly 4,000 new…

His #IVIG infusion was a disaster this morning and here’s why

Gavin's been having a difficult morning so far. It was IVIG infusion day again (as it is every Monday and Friday), and it did not go well. Lately, Gavin likes…