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This isn’t supposed to happen

It's Gavin's 21st birthday and we were off to a good start. His IVIG Infusion supplies showed up and he immediately went to work. Whenever he gets his supplies, I've…

A few concerns have bubbled to the surface today

Gavin missed his IVIG Infusion yesterday because his supplies never showed up. I called the pharmacy and they are apparently waiting on a new order from his doctor. They expect…

Some of Gavin’s labs are coming in and they’re still very concerning

It's been an emotionally exhausting day. I spent most of today trying to keep myself focused on the things I have control over. Unfortunately, there's a great deal that I…

I’m getting divorced: What I’m grateful for and few other updates

The boys are still sleeping and Gavin's IVIG Infusion is going. The only noise I hear at the moment is the filter in the aquarium because the tank needs water…

Gavin gets his final dose of the #COVID #vaccine today

It's gonna be a hectic day. I have a two hour meeting after lunch and it should finish up just in time for me to get Gavin to the health…

We made some major progress today

It's been a really long day and I'm going to bed super early. We worked on the outside of the house all day today. My parents came over to help…

When I finally get an overnight break from my kids

I had an overnight break for the first time in a little while. We had a memorial day cookout yesterday at my parents, and the boys ended up staying the…

It’s Monday for anyone losing track of the days

Generally speaking, Monday and I don't get along. We've been doing this same song and dance for my entire adult life. I feel like Monday tends to shit all over…