Team Gavin: Medication Update

During our last appointment with Dr. Moodley at the Cleveland Clinic, there was a medication change that was scheduled to take place today. One of the treatments for Gavin's Autonomic…

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I’m worried sick about Gavin

Tonight we had a really bizarre occurrence that ended with me overwhelmed and freaking out.  It started out with Gavin coming downstairs and asking if his vision getting blurry means…

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Gavin’s having chest pain

Gavin started having chest pain a short while ago. His heart rate was bouncing between 56bpm and about 130bpm. That's definitely not a good thing. We have begun making plans…

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