It was a really difficult day but that doesn't mean there isn't anything for me to be grateful for... Sometimes when your a special needs parent and despite your best efforts, you just can't tip the scales in your direction. This happens quite a bit in my life but on those days, I don't focus on what I couldn't do. The truth is that sometimes, the biggest victory of all is that you physically and emotionally survived the day.. 😉
As difficult as Saturday was, we weren't without our little victories.. As I mentioned in the previous post, Emmett really struggled today and there wasn't much I could do to provide him comfort and relief. I was able to keep him distracted for a little while by playing Minecraft together. We just sorta snuggled on the couch and he would join my Minecraft world. 😀 It brought him a little bit of peace and it's honestly really fun.. I'm tossing this into the win column.
I'm so grateful to the boys for letting me nap a little bit this afternoon. I haven't been feeling well since I got up this morning. I don't know if it's something I ate or if it's a stomach bug but I've been really nauseous and I can't get rid of this headache. For the most part, the kids have been great. Emmett's entered into another fever flare and so he's hardly eaten anything today because his mouth hurts too bad. He's really sporting a short fuse at this point but I certainly can't blame him. He's got to be absolutely miserable. I'll write more about the flares in another post later on but the whole point is that all things considered, the boys have done really well today. I'm…
I want to take a few minutes and share a pretty big victory we celebrated tonight. The world at large probably won't understand the significance of something like this but I know at least some of you will. Elliott struggles with extreme anxiety. He takes medication to improve his quality of life but it doesn't really help. The boys and I walked the track tonight. Elliott wanted to explore the banks of the creek but I had to tell him no because we were racing the weather and I didn't want to be caught in the rain. Elliott wasn't happy with that and kept pushing and pushing to be allowed to go. My answer didn't change and he was getting really frustrated. I stood my ground because I knew…