Heartbreaking: We do what we must for those that we love

I'm way behind on this update, but life has been getting in the way of writing. That said, what better time than the present to get everyone caught up. This particular update is in regards to Gavin and Wednesday night therapy. I had mentioned that he was chomping at the bit to update us on the missions he's been on recently. I also said that my enthusiasm for those updates was a bit lacking because it's a lot to take in, and it's a reminder of just how much he struggles with reality. It's important to me that I be supportive of him, but at the same time, I can't feed into his delusions. It's a very blurry line on the best of days, and it's not easy at all…

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Code Z

Another day, another psychotic episode. Last night, Gavin came running into the living room and was visibly upset. He began nervously pacing back and forth before blurting out code z. I wasn't paying close attention to what he was saying because he's psychotic and saying all kinds of crazy things. I don't mean that disrespectfully but instead it's literally what's happening in my house right now. After he began shouting code z - code z, I was concerned about his little brothers hearing him, so I calmed Gavin down and asked him to explain to me quietly what was going on. Even paying meticulous attention to his words left me struggling to follow what the hell he was talking about but here's what I gathered. Code Z stands for Code…

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We’re becoming more concerned

This will be quick because I'm exhausted. I have a call into Gavin's psychiatrist because we learned that Gavin is waking up in the middle of the night to go on missions. This is very concerning because the last time we dealt with this, he was dealing with a voice he called his Lego boss. Lego boss was an asshole. He bossed Gavin around and would wake him up in the middle of the night to build Lego structures. He also tries to get him to do bad things. He's not real, but at the time, to Gavin he was. He hasn't said anything about his Lego boss returning, but something is waking him up in the middle of the night and making him do things. We need to turn…

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Something is very very wrong

We had kind of a weird night last night. I was being interviewed on a podcast called, Daddy Unscripted and it went on for much longer than was initially planned. It was a fantastic conversation and one that I can't wait to share. By the time I was done, I wasn't up to writing, so I'm playing catch-up today. Elliott and Emmett are in the middle of State testing. Lots of fun. We're all existing in a house, full of stress and anxiety that State testing tends to bring my kids. I feel like they're handling things quite well and while Elliott struggled to fall asleep last night, both boys are doing great. They usually do very well on State testing, and there's no reason to expect anything different this…

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Watching my son come unglued is awful

It's been a weird day, filled with Gavin related challenges. Lizze and I spoke at length this morning, and we both feel like Gavin is coming unglued. That's not meant in a derogatory way. We're both freaked out a little bit because there was serious doubt that the Clozapine was actually doing anything anymore and it's now quite clear that it was holding back the tidal wave of hallucinations. It's important to understand that as bad as things are getting for him in this area of his life, we do not see anything that warrants safety concerns for anyone around him. Announcing that he's a God is worrisome, but he's still a good guy, battling evil and not going dark if that makes sense. We would need to be more…

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It’s heartbreaking and a bit scary

The boys had a great day at school today, and in the way home, we stopped to visit my grandmother. We had a short visit before returning home blah blah blah. Not to downplay the significance of the above paragraph but what I want to focus on tonight is what came out of therapy tonight. This is specifically in regards to Gavin. Gavin was pumped and ready to tell us all about the missions he's been on over the last couple of days. This shouldn't be anything new or shocking to you, especially if you're a long time reader. Gavin is Autistic and Schizophrenic among other things. As a result, he experiences things that only he can experience. In other words, he sees and hears things only he can see…

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Something happened today, and it was heartbreaking

I got the boys off to school and went walking. When I got home, I was sitting in the living room with Lizze and Gavin. After a few minutes, Gavin jumped up out of his chair, picked up an invisible phone, said it was an emergency and ran into the kitchen to take a call. He had a very brief, but loud conversation before coming back into the living room and informing us that Ash (from Pokemon) was in trouble and needed his help. So to recap, he had an emergency call from an invisible, fictional person, on an invisible phone, sending him on a dangerous, imaginary mission. Did you get all that? He was pretty worked up by all this and had a sense of urgency in his voice.…

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