Emmett's in a great deal of pain today and will be for at least the next few days. Yesterday he broke out with mouth sores again and they're pretty bad. His antivirals are keeping things from being any worse than what they currently are but they aren't stopping them altogether. We began doubling up on his antivirals, as we're supposed to when he's in a flare-up and hopefully they will disappear over the next few days. The sores are related to a very rare fever disorder called PFAPA. He's had this all of his life and while it's evolved over the years, it's very, very disruptive. Emmett used to run fevers of 105°F for about ten days, but not actually be sick. He would then be fine for roughly two…

Today's trip to the immunologist was very trying for me personally. It felt absolutely chaotic and frustrating because everyone was experiencing some degree of anxiety. That made them difficult to manage as well as very, very loud. I always find it odd how my kids can be very sensitive to sound and yet outrageously loud at the same time. Aside from the appointment and the drive being overwhelming for me, the results of the appointment were relatively positive. Just so we're clear, everyone behaved really well and cooperated as best they could. This was a big ask for them and truthfully, it went really well. It was just a lot for me. The staff loves seeing everyone and it's like their major event for the day. I was just overwhelmed…

Emmett is feeling better this morning and that's awesome. He can't return to school today though because he has to be clear of a fever for 24 hours and he hasn't been yet. If he remains fever free at lunchtime, he'll be good. ☺ Tomorrow we will be at his specialist in Cleveland for a follow-up. This is important because his fever cycles are becoming more frequent and that's causing him a great deal of pain. We also need to discuss the possibility that he's got something called cyclic neutropenia rather than PFAPA. Frankly, aside from accuracy, I don't know if it even matters. I don't believe there's a treatment for cynic neutropenia and we know there isn't one for PFAPA. The only reason it would matter is if treatment…