My thoughts Archives - Page 86 of 1480

Starting the day off with good news

I wanted to share a bit of very positive news this morning. I know it seems like everything is always negative here but it really isn't. The idea of being transparent means that you get a glimpse into the reality in which I live. The reality is, there are major challenges in my life and if I wasn't open about them, what you'd be reading was nothing more than spin or fantasy. With that said, I'm super stoked to share this today. For months and months, my youngest, Emmett, has refused to sleep in his own bed. He's been through so much and sleeping near me is the only way he was able to fall asleep. It's problematic and has significantly reduced my overall quality of sleep, but as a…

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January 17, 2020

How @ProbGenetic is helping us take a MAJOR step forward in the search for answers

If you've been following our story for a while, you likely know that its been on a very long, very challenging journey with Gavin for most of his life. If you're new here, I'll give you a bit of backstory, to help put the significance of what I'm about to share with you, into the proper context. Gavin will be 20 years old on January 18, 2020. He deals with more than his share of serious physical and emotional health issues. Gavin began regressing about the age of 4. The only way I can describe it is to say that he was put to bed Gavin, and he woke up an entirely different kid. The change was simply that profound. I know this sounds crazy but it was like someone…

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January 16, 2020

My thoughts

I’m seriously stressing out right now

Many of you know, we just recently got a new car. It's a 2016 Buick Regal Premium II Turbo. It is a significant investment and the first one I had to make as a single parent. I just made my third payment this month and while it's a challenge, it's something I'm very proud of. I was able to do this completely on my own and that feels so good. Twice this week, I've experienced car problems. It's a 2016 and I was hoping to have a bit of time before having to deal with anything like this. Earlier this week, the car wouldn't shut off properly. It's passive entry and push button start, so I can't just turn off the ignition and pull the key. It only happened the…

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January 16, 2020

Emmett John / My thoughts

We finally have a plan to help my youngest

We finally have a workable plan, at least in theory, to help Emmett get back to school. Again, this is a nonperfect approach to a very challenging and fluid situation, but it's a plan nonetheless. Emmett is dealing with some very serious emotional challenges right now and it's interfering with every aspect of his life, especially school. He's been unable to attend regularly for weeks and that's a major problem. I have a whole team of people working together to help get him through this. The two main options in regards to school were either home instruction or homeschooling. Home instruction is where the school sends a teach out a few days a week to work with Emmett. Homeschooling is much more challenging and basically involves me educating Emmett at…

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January 16, 2020

Announcements / My thoughts

Here’s what’s up with my @GoFundMe and how you can help

I shared this information on the GoFundMe page itself but I wanted to share it here as well. Additionally, I've provided a breakdown of everything as well. Please do not feel obligated to contribute, but if you can, and want to, please follow the link to and do so. Visit the GoFundMe. Recently, my kids and I were presented with an amazing to increase inclusion and give back. We were invited to Orlando, Florida by DoubleTree by Hilton at SeaWorld. They are among the first in the country to become Autism certified and they asked if I would bring my family to visit and evaluate first-hand, their Autism specific accommodations. This is a big deal for everyone in the Autism community because businesses are starting to step up and become…

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January 15, 2020

Emmett John / My thoughts

I’m really struggling with my youngest

Just a quick update on Emmett. I haven't heard anything from the school as to what our options are. I did talk to his therapist tonight and our goal is to get him back into the classroom but we also recognize that this will likely be a process. Right now the plan is at home instruction. The details of that will have to be worked out, assuming it ends up being a viable option. The goal is to get him on the road to getting back to school. We're currently brainstorming ideas but the bottomline is this. We have to help him obtain and utilize the tools necessary to get through this. That's proving very challenging. His therapist will have documentation for the school by Friday and that will help…

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January 15, 2020

My thoughts

I’m choosing to focus on the positive tonight but it’s not easy

I wish I was able to be a bit more uplifting right now but the reality is that things are very difficult at the moment. I have my hands full with the kids and all they're currently struggling with. I'm spread so thin you can pretty much see right through me. As tough as things currently are, we're finding our way through the darkness. No one is giving up and no one has been left behind. That's a very positive thing and I'm trying to focus on that. It's times like these that it's even more important to find a silver lining. I'm going to remain focused on the positive as best I can, while trying not to be taken over by the negatives. The last thing I'll say for…

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January 14, 2020

Emmett John / My thoughts

There’s no way to prepare for your child being in crisis

Emmett didn't go to school today and I took him with me walking this morning. I'm really struggling with this but I still need to take care of myself. It's not a perfect solution but in the absence of any workable options, I'm doing the best I can. All I will say is that what Emmett is going through emotionally is serious enough to limit my options and absolutely must be taken seriously. I should hear back from the school tomorrow about our options. Until then, I'm struggling to keep him above water and moving forward. He's in therapy and getting all the help he needs but nothing is going to fix this. It's a process that he must go through and we need to provide him whatever tools or…

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January 13, 2020