My thoughts Archives - Page 59 of 1480

Today was full of accomplishments

Elliott had his first day back today and it went amazingly well. I say first day back because we moved both Elliott and Emmett back to their old school. They're remote learning instead of distance learning and the experience thus far has been night and day. Emmett is supposed to start Friday, September 4th but we're still waiting on some things to be processed. I'll call in the morning and see what's going on. Maybe he can still get started. The setup is very different than what we've been dealing with these past two weeks. Elliott remotely goes to school four days a week and Emmett will attend remotely, three days a week. The off days are for homework and extra help if needed. Elliott had a great day and…

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September 3, 2020

Gavin / My thoughts

Gavin’s labs came back and it’s mostly good news

Let me start out by stating that I'm absolutely overwhelmed. The last few weeks have been incredibly challenging for me. The last 2 weeks in particular, have been much worse because I've been so worried about Gavin's health. I have an update for you but not really an explanation because I don't know that we really have one at this time. After an enormous amount of frustration, glitches with MyChart, and long phone conversations with the always amazing people at Akron Children's Hospital, I was finally able to get the results from his recent labs. Gavin spent his hurry up and wait time working in his 5D art stuff. ☺ The headache it took to make that happen is due in part to unusual circumstances, HIPPA and technical problems. That…

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September 3, 2020

Gavin / My thoughts

Some of Gavin’s labs are coming in and they’re still very concerning

It's been an emotionally exhausting day. I spent most of today trying to keep myself focused on the things I have control over. Unfortunately, there's a great deal that I have no control over and that sucks. I was very consumed with waiting on Gavin's lab results to come back from yesterday's repeat lab work. You can read the back story here. About 10 am this morning, part of the results came back and unfortunately, they haven't improved. I'm still waiting for the results containing his immunoglobulin levels because that's the big one. It stands to reason that we're likely looking at those results very concerning results being verified. As it stands, we are looking at another day before we get those results back and I can't explain just how…

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September 2, 2020

My thoughts / Sponsored Post

Personal injury – will your claim be accepted?

If you have been injured through no fault of your own, you may have wondered whether you have the right to claim compensation - especially where companies are involved (for example, you may wonder how to file a lawsuit against walmart or how to start a claim against a museum or cinema chain). These queries are normal. Let’s look at some considerations surrounding whether your claim will be accepted. Duty of care The duty of a care is a real thing that you may never have considered. The basics of the duty of care are that no matter where you are and what you are doing (as long as you are outside of your own home), there is an expectation that the landlord / proprietor / local authority will have…

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September 1, 2020

Gavin / My thoughts

Quick Update On Gavin’s Condition

It's been a long stressful day but when is it not, right? I wanted to drop a quick update on Gavin's situation because I have some news. After a many phone calls and several attempted workarounds, Gavin's new lab orders were faxed to Akron Children's Hospital. By the time we got there, it was pushing 1pm. Gavin did great, as usual and we're currently waiting in the results. It's frustrating because I hate waiting, especially considering the stakes but hopefully, by the time you read this, we'll have some answers. Not much else to say at this point because today has been consumed with getting this addressed. I told you it would be quick.

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August 31, 2020

Gavin / My thoughts

I’m really worried about his test results

We have a rather eventful week a head of us. The direction it takes will largely depend on the results of Gavin's labwork Monday. Background: If you recall, Gavin's labs from this past week were so concerning that we're retesting to make sure they're correct. So much is so drastically wrong that we need to rule out lab error. Gavin's not exeriencing any obvious problems and he's not complaining about anything. With how bad these labs were, he should be in pretty rough shape. Until we know for sure though, we aren't taking any chances and have locked down even tighter. End Background This will go one of two ways. Gavin's labs will either come back normal and we move forward or they will come back problematic and require immediate…

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August 30, 2020

My thoughts

Helping my #autistic son manage his own routine and schedule

One of the things I really need to invest more time into is helping Gavin manage his routine. He does pretty good with major things like brushing his teeth or taking his meds. That's a awesome because those are both very important things. The stuff he really struggles with is everything in between. He so easily loses track or time or gets lost in what he's doing. He's been telling me lately that his imagination takes over. Gavin needs frequent reminders in order to stay on task and not drift too far off course. I mentioned before that I'm using visual prompts and check lists to help him remember but I'm always looking for better ways to help him navigate life. Sure, it's fun laminating things but there's no point…

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August 29, 2020

COVID19 / Gavin / My thoughts

I heard back from Gavin’s immunologist

I heard from Gavin's doctor this afternoon and I'm not surprised by the approach we're taking. Basically, Gavin's labs are messed up enough that we need to verify their accuracy. The plan is to redo his labs on Monday. The results will trickle in either that day or the following. If everything is fine, then we can breathe. If these come back the same, I'm not sure what we're going to do. If the results are confirmed, it would appear that there is something potentially very serious going on with Gavin. Until we figure out what is happening, I'm assuming the worst. Normally, I would not do that, or at least try not to do that. In this particular case, assuming the results are correct will require me to take…

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August 29, 2020