My thoughts Archives - Page 55 of 1481

It’s been a heartbreaking day

Remote learning is like a fucking emotional roller-coaster for everyone involved, but especially for our kiddos on the autism spectrum. We have had our ups and downs but today was a particularly challenging. I stopped working today, which is hugely problematic, in order to help Emmett navigate his schoolwork. For some reason, he was completely overwhelmed by the tasks on the screen before him. There's a million reasons he's overwhelmed but I don't know what pushed him over the edge today. How many of you out there have seen similar with your own kids lately? It's currently 3pm and I've been trying to help him work through his anxiety, frustration and whatever else he's feeling that I can't see on the surface, all day now. Remote learning is a necessary…

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October 6, 2020

COVID19 / My thoughts / YouTube Video

I stepped outside of my comfort zone and spoke my mind because it matters

I've said this before and while it may not appear this way on the surface, I'm way too self-conscious to enjoy appearing on TV. That said, I've been doing it anyway because some things are more important than my comfort level. I will continue to do so when the opportunity presents itself because I want to make a difference and do my part. Today was one of those days. I was asked by my friends at ABC News Live to speak again, but this time to how I feel about the current status of COVID19 and the news of Donald Trump being infected. I know many like to steer clear of politics but unfortunately, we no longer have the luxury of standing on the side lines, pretending like everything is…

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October 5, 2020

My thoughts

We’re without a car for a few weeks

We are officially without a car for the next few weeks. I dropped it off at the body shop this afternoon and my Mom was kind enough to bring me home. It was a bit weird because I've not been in a car with anyone other than the kids in 2020. The ride was less than 10 minutes. We kept the windows down and we both wore masks. I had my KN95 and my main cloth mask on cause I normally keep them in the car and I wanted to bring them home in case I needed them. I wanted to protect my Mom and myself and my kids, so we took this brief ride very seriously. I'm so grateful that my parents are there to help when I need…

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October 4, 2020

Day Trips / Family Fun / My thoughts

One last trip before for the next few weeks

I took the boys to Quail Hollow for one last hike before the car goes in to get fixed. It's going to be a few weeks before I get it back. We don't go anywhere very often but it sucks anyway. We found an entirely new trail and it took us roughly 2.5 miles start to finish. Everyone did awesome and the weather was perfect. We were so far away from anyone else that we were able to take our masks for a little while and smell the Fall leaves. ☺ There's an abandoned house in the park that I've always wanted to know more about. You can see it in the gallery above. The trail we took today lead us right behind it. You can see the path we…

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October 4, 2020

Akron Children's Hospital / Gavin / My thoughts / Pediatrics

Round 3 of blood work for Gavin

It's been a long day but a pretty good one. I didn't write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time focusing on his liver. I hate doing this because it puts us in contact with other people but it was a necessary evil. Gavin's levels have been off and we have to keep following up until we figure it out. I needed to get this done ASAP because the car goes into the bodyshop this weekend and I'll be car-less for a few weeks. Gavin has an appointment with gastro coming up and we need…

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October 3, 2020

COVID19 / Link / Lockdown / My thoughts / Remote Learning / School

Remote learning is going okay but I’m maintaining perspective

Moving on.... So we had a pretty decent day today. Elliott had to get his Chromebook swapped out, so Lizze and her Mom picked that up and took care of that for us. That was super helpful and I'm grateful. School is going better and the boys are starting to get into something that when you squint, sorta resembles a routine. At best, it's a bastardized routine but progress is progress. I'm not going to apologize for letting my kids be comfortable while they're learning. This whole thing is a nightmare and I have zero concerns about them chilling on the couch, bed or anywhere else that makes learning a positive thing. As long as the kids are appropriately dressed, in good lighting and they're teachers are happy with their…

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October 2, 2020

My thoughts / Sponsored Post

‘Pink And Gray – Calming Color Combo For Your Home

Black and white, orange and blue, red and gold… we are all aware of the classic color combinations. And, there is no denying they look great! But, if you really want to take your interior design skills to the next level, you should consider unusual color combinations. Pixabay License Free for commercial use No attribution required When you get unusual color pairings right, you can give your home the X factor. One color combination that can look incredible is pink and gray, and yes, we are serious! Read on to discover all you need to know. You don’t have to take our word for it; when Pantone announced that their color of the year a few years ago was Rose Quartz and Serenity everyone was taken by surprise. This is…

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October 1, 2020

Inspirational Posts / My thoughts

What kind of person shames a special needs parent?

Shaming special needs parents is not okay. It's not. I want to take a moment before we get into this I want to briefly talk about the shaming of special needs parents. Frankly, this applies to any parent but right now, I'm reaching out to special needs parents in particular because this is something we endure on the regular basis. People can be assholes. No one has the right to shame you. Most people have no clue what your life is like or the challenges you face every single day. These mean spirited, ignorant, and hateful people couldn't fill your shoes, let alone a mile in them. I hear from parents all the time who are dealing with judgment, ridicule, and shaming. It's heartbreaking and I know how hard it…

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October 1, 2020