Remote learning is going okay but I’m maintaining perspective

Moving on.... So we had a pretty decent day today. Elliott had to get his Chromebook swapped out, so Lizze and her Mom picked that up and took care of that for us. That was super helpful and I'm grateful. School is going better and the boys are starting to get into something that when you squint, sorta resembles a routine. At best, it's a bastardized routine but progress is progress. I'm not going to apologize for letting my kids be comfortable while they're learning. This whole thing is a nightmare and I have zero concerns about them chilling on the couch, bed or anywhere else that makes learning a positive thing. As long as the kids are appropriately dressed, in good lighting and they're teachers are happy with their…

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‘Pink And Gray – Calming Color Combo For Your Home

Black and white, orange and blue, red and gold… we are all aware of the classic color combinations. And, there is no denying they look great! But, if you really want to take your interior design skills to the next level, you should consider unusual color combinations.  Pixabay License Free for commercial use No attribution required When you get unusual color pairings right, you can give your home the X factor. One color combination that can look incredible is pink and gray, and yes, we are serious! Read on to discover all you need to know.  You don’t have to take our word for it; when Pantone announced that their color of the year a few years ago was Rose Quartz and Serenity everyone was taken by surprise. This is…

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What kind of person shames a special needs parent?

Shaming special needs parents is not okay. It's not. I want to take a moment before we get into this I want to briefly talk about the shaming of special needs parents. Frankly, this applies to any parent but right now, I'm reaching out to special needs parents in particular because this is something we endure on the regular basis. People can be assholes. No one has the right to shame you. Most people have no clue what your life is like or the challenges you face every single day. These mean spirited, ignorant, and hateful people couldn't fill your shoes, let alone a mile in them. I hear from parents all the time who are dealing with judgment, ridicule, and shaming. It's heartbreaking and I know how hard it…

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We turned our @nanoleaf panels into a father/son project

One thing being on lockdown for 209 days has showed me is that I can do better at making the best of what we have. It's no secret that none of us like where we live. I've not tried to hide the fact that we live in a bad neighborhood or that my kids and I desperately need to move. Living in this situation, while dealing with everything else has been been very challenging, especially since becoming a single father. As a result, I'm guilty of not putting as much effort as I could into making our home a more usable, comfortable place for both myself and my kids. That's on me. Being stuck in the house for as long as we have been has made it very clear that…

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For fuck’s sake, enough with the judgement already

We had a pretty good day. Emmett had a rough start and missed his first class of the day but recovered and did fantastic. Elliott did awesome as well. Unfortunately, he's experiencing some technical difficulties with the connection to the school but their tech support is looking into it. Tomorrow is an offline day for Emmett, meaning he doesn't have any live online classes but he uses the time to work on his school work and cna meet with his teachers should he need extra help. Okay, I'm going to stop here because I feel there are some things that need to be addressed. I have my share of trolls and I've been trying to let most of the comments stand lately but sometimes, they're so mean spirited that I…

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A slight hiccup to the start of our day

First of all, I love waking up in the morning with my balcony door wide open. The morning sun shines right in and it's just a good start to the day. I've not been sleeping well lately and getting up in time to get the kids to school isn't easy. On this particular morning, Mr. Emmett is under the weather. He's dealing with nausea and I think it's due in part to post nasal drip, with a heaping helping of stress on the side. Anyway, he's struggling a bit and I called him off from his first class this morning. I'm hoping that a slower start will help him work through this and get back to school in time for his second class. I got him setup on my bed…

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A Ginormous Update

Alright folks, I'm playing catchup here and this will be a rather large update. So buckle up, it's a couple pages. First things first, I feel like we had a pretty decent weekend. The boys had a great visit with their mom and aside from a few hiccups with Gavin related behaviors, it seems like a very positive experience. That's awesome. They adjusted to being home in short order and picked up life where they'd left off before their trip. We spent some time working on the house. The boys want to bolster our security, as do I, because of all the recent shootings in our neighborhood. Just the other night, there were three woman shot while they were sitting on their front porch. I heard the shots but didn't…

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It’s incredibly frustrating when the answers you get aren’t the answers you want

I met with Gavin's genetic counselor this afternoon, to go over the results of his exome sequencing. This has been a long time in the making I want to give a huge shout out to Probably Genetic for all their help. Essentially, what I learned is that we really didn't learn a whole lot. I say that because we didn't find answers to the many questions we've had for a very long time. That happens and it's for one of two reasons. The first reason being that there's nothing wrong and the second being that science simply hasn't identified everything yet. There are limits to our scientific knowledge but as that knowledge expands, answers may appear as the data is reinterpreted. When I say we didn't learn anything, that's not…

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