I got a break for the first time since September

It's been a couple days and I wanted to share something before I crash for the night. This will be brief because I'm exhausted and I'll try to follow up later. The other day, I called Lizze to find out if they'd been locked down for at least 14 days. They had been and so I suggested making arrangements for the boys to go over for a few days. It's been since September and that's really hard on her and the kids. We had decided to shut visits down until COVID was under control. That's the only reason she hasn't seen them. Since the insurrection at the Capitol Building and the current threats for this coming week, as well as how much worse COVID is getting, I thought we should…

2 Comments

A few concerns have bubbled to the surface today

Gavin missed his IVIG Infusion yesterday because his supplies never showed up. I called the pharmacy and they are apparently waiting on a new order from his doctor. They expect to have that some time today and then we should get the supplies this week sometime. This always makes me nervous and I know it upsets Gavin because not only does it break his routine but he also misses an infusion. As much as he hates these life saving infusions, he hates missing them even more. He's feeling a little better knowing that he might have his supplies before his next scheduled Infusion on Friday. Mr. Emmett hasn't been feeling well today. He ended up in my room at some point last night because he had a stomach ache. He…

0 Comments

We escaped for a little while today

The kids had a mixed bag kind of day because life is just getting to be a bit much lately. I got the kids to school and we made it through the school day. I mean, it's remote learning so we didn't have to go very far but it can still be a challenge. Everyone is current on their school work and that's awesome. I'm so proud of my guys. There was a good bit of fighting today because, as I said, they're just done with everything going on around us. They tested my patience and I'm not afraid to say that. After Elliott finished up class, I decided to take them for a short hike. We were only out for about an hour and didn't run into any another…

1 Comment

Communicating with my adult #autistic son

I've mentioned this a few times before but Gavin and I have a unique relationship. We're very very close and direct with each other. I've learned over 20 years that Gavin needs people to be very direct with him. If you give him any room to interpret the meaning in your words, he will often struggle to understand. That's just part of who he is and that's okay. From the outside, it can seem like I'm being mean but in reality, I'm not. If I used this approach with someone else, I might agree but sometimes we have to cater our approach to the needs of the person we're trying to approach. Here's an example of what I'm talking about. If Gavin is talking too much, which he's known to…

0 Comments

T-minus 30 Days

We're just beginning to wade into 2021 and there are already some major changes coming our way. Perhaps the most important is the finalization of my divorce. Lizze and I learned that exactly 30 days from today, our divorce will be final. That's a good deal faster than either one of us had planned on. We had projected that we would be looking at the second or third week in February at the earliest. This really doesn't change anything but it just pushes the date forward a bit. Nothing aside from that has changed. I guess I was knocked back a little because I had prepared myself for a later date but I supposed sooner is better than later. The kids are aware of this and while they aren't aware…

2 Comments

Check out @NoNetzSuits sensory friendly clothing

It's no secret that sensory issues have impacted my kids for years. Clothing has been one of the most challenging for Emmett in particular. Socks have been difficult for him but we can more easily work around him not wearing socks. Unfortunately, there are some items of clothing that we really can't easily go without. Shirts are currently a struggle. We've been on lockdown for well over 300 days and aside from school, shirts aren't absolutely necessary when we never leave home. The problem with him just not wearing one is that it makes it much harder for to wear them when he needs to. That brings me to my reason fo writing this post. I was recently introduced to a clothing company called NoNetz. They sent some sample clothing…

0 Comments

My kids had to learn about Trumps attempted coup in school today

We've made it through the first week back at school and we're doing pretty awesome. Emmett is completely current as is Elliott. This has been a challenge for autistic kids in regards to remote learning. I've spoken with tons of parents dealing with the same or worse. Lots of kids don't even show up to class every day. I I feel pretty good at this moment in time because the boys are adjusting to the change, finally. It's only taken half a school year but we have made progress. That's a positive thing and I'm crazy proud. We had a rough day yesterday because you know, an army of stupid Trump supports literally laid siege on the Capitol Building, in a attempted coup. The goal being to ensure a second…

3 Comments

Our first day back after Christmas break

The boys had a great first day back at school, at least as far as remote learning is concerned. Emmett is feeling very motivated this quarter and that's a very positive thing. He brought his grades up two letter grades in the second quarter and I'm so proud of him. I even brought him a cup of hot chocolate cause the house was a little cold this morning. We try to keep the house a little cooler cause it's easier on the gas bill. He apparently has started drinking hot chocolate with a straw. Elliott had a great first day back as well. He's not super motivated but he's got a good attitude and I'm happy for that. All things considered, that's all I can ask for. It's a short…

0 Comments