The weird things my son with #Autism says

The things I talk about in this post are not meant to be disrespectful for Gavin. If you're an Autism parent, you'll probably have at least some experience with your kid saying something weird in front of someone in public. They don't mean anything by it. It's just those pesky, awkward social and conversational skills.  We've all been there and it's okay to talk about these moments because if we don't have a sense of humor, we'll go crazy at a much faster pace.  It's a sign of a good day when I've made it this far without collapsing from exhaustion. 😁  The boys got off to school without too much headache and we really do appreciate the effort they put in to make that happen. Not having to deal…

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My son’s sensory issues totally kicked my ass today

Mother of God, I didn't think we were going to survive this morning. Everyone was in a great mood and that's awesome. Elliott and Emmett were getting along and there wasn't any fighting whatsoever.  Let me tell ya, that almost never happens.  All of that awesomeness ended the moment it was time to put shoes and socks on. Our mission of helping Emmett tolerate his shoes and socks began about 7:15 am and we finally arrived at the school at 9:00 am.  It took almost two hours to work through the sensory issues this morning. There was so much screaming and panic over how his socks felt funny, I wouldn't be surprised if my neighbors, three doors down could hear him.  We came so close to throwing in the towel and…

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Why #Autism Parenting blogs are SO important

There are always those people who don't understand or misunderstand the purpose of this site or my writing style. I wanted to provide some insight into the how's and why's because I've received a large influx of new readers and I'd like everyone to understand why I do this. I'm connecting with quite a few families that are just beginning their Autism journey. They're looking for a path, and I'm able to help provide them with a place to start and sanity as they move forward. When people are just beginning this journey, they feel very much alone. There are feelings of isolation and that no one understands. While some may not understand this, Special Needs parents find comfort in knowing they aren't the only ones depressed, frustrated, overwhelmed, imperfect,…

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Pictures from our busy #Autism family day

I wanted to share some of the pictures from today. Included below are pictures from speech and OT to fun with our ferrets and running errands.  These simply help give you some insight into what goes on in a typical-ish day for my Autism family...  ☺ 

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My son is missing his critical medications for the month

A large part of my stress load today is the result of Gavin's IVIG supplies never showing up.  I was contacted on Friday by the supplier who said that Gavin's shipment is delayed because they have been unable to get refills from the doctor. They were going to fix this yesterday but that never happened.  I spoke with Gavin's doctor today and they have never been contacted for a refill or it would have been done immediately. I believe them because we've never had a single issue with them in five or six years.  The doctor's office also stated that Gavin current script covers him through May of this year and he doesn't even need a refill yet.  They are currently working to resolve this and have checked in with…

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I’m heartbroken over forcing my son with #Autism to go to school today

I woke up exhausted, but in a good mood. That mood carried me through until it came time to get Emmett in his shoes and socks.  Lizze worked for quite some time with him on being able to tolerate his shoes and socks. Unfortunately, despite her best efforts and massive amounts of patience, we never resolved anything for more that a few minutes.   Emmett was okay with things until he got in the car and I began making the drive to school.  At this point he's freaking out, screaming and ripping his shoes off again. This lasted the entire trip to the school and I wasn't in the best place to deal with this.  When we got to school, I had to park the car because he wouldn't get…

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We have a problem that needs to be resolved today

If I had to describe how I slept last night, I would probably say shitty. I had a really hard time getting comfortable and would wake up because my back was killing me.  Then at some point, both Elliott and Emmett took turns waking up.  Despite a rough night, I'm actually in a pretty good mood. Lizze has an appointment this morning and Gavin and I will be walking while she's there.  We have a full day of appointments ahead of us today, as well as some problems to overcome. The biggest one being the fact that we haven't received Gavin's IVIG infusion supplies yet and were unable to perform his infusion yesterday.  Resolving this will be the priority today.  I hope everyone is having a decent Tuesday thus far.…

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When to hold a special needs child accountable 

I love having the boys home but I hate these four-day weekends because they totally throw me off the following week. All day today I thought it was Sunday because the boys were home from school. I'll end up being a day off for most of the week.  😁  Putting that aside, I think we had a pretty good extended weekend.  We didn't have the money to really go anywhere but we took the kids walking,  three out of the last four days. In total, we did about five or six miles and that's pretty good.  Emmett was in flipflops because he wouldn't tolerate his shoes but he only had a couple of issues within that five or six miles, where his feet were bothering him.  I'm hoping to make…

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