Read more about the article This is why I’m not doing so well today
My thoughts

This is why I’m not doing so well today

The boys are spending the day with their Grandparents and I just woke up from my nap. I've been in pretty rough shape the last few days because my back has gone out.  I suffered a major back injury back in 2001 and it took the better part of twelve years to finally manage the pain.  I've been doing really well that past few years, mostly because I discovered that fitness walking helped tremendously.  I'm not sure what has happened but the pain is so bad, it takes my breath away. Walking isn't the fix all at the moment because when I try, my legs physically give out. It's one of those things where I step funny, and literally lose control of my lower body.  While this sucks, I'm not…

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April 9, 2017
Read more about the article Impressive artwork by Emmett
Artwork / Emmett John / My thoughts

Impressive artwork by Emmett

The other day, Emmett brought this picture home from school. I guess he drew this during his free time and wanted to share it.  I'm impressed with this because he drew a 3D block and then drew it pulled apart, in 3D. That takes some insight into how to manipulate 3D objects and then draw them based on what he sees in his head. ☺ 

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April 9, 2017
Read more about the article Has anyone faced this bizarre #sensory processing issue before? 
Emmett John / Feeding Problems / My thoughts / Sensory

Has anyone faced this bizarre #sensory processing issue before? 

Recently, Emmett has been struggling a great deal more with eating. If you've followed our story for awhile, you might recall that we have an enormous challenge when it comes to Emmett and eating. He's extremely sensory oriented and struggles with things like food, clothes, noise and shitload of anxiety. The anxiety serves to make everything worse. Anyway, Emmett has a very small menu of foods he'll eat, and that makes it challenging to feed him. He's very sensitive to things like taste, smell, color, shape, packaging, presentation and imperfections. It's not uncommon for me to have to remake something a few times because something about it wasn't right. Recently, Emmett has begun saying things like, this doesn't taste right. The problem is, what doesn't taste right, happens to be…

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April 8, 2017
Read more about the article New health concerns for 2 of my kids with #Autism 
Childhood Disintegrative Disorder / Emmett John / Gavin / My thoughts / PFAPA

New health concerns for 2 of my kids with #Autism 

I haven't had the energy to catch you up on a couple of things that are causing us to be concerned, in regards to the kids.  I'll start with Emmett because we learned something new about his fever disorder, while we were at the immunologist the other day.  She is the doctor that handles his fever disorder, as well as Gavin's Immunodeficiency, everyone's asthma and seasonal allergies. She also handles Elliott food allergies.  When it comes to Emmett's fever disorder, we have been chasing this thing since he was roughly a year old.  Fever cycles consist of many different and evolving symptoms. What we refer to as a flare up, presents with mouth sores, joints that are hot to the touch, massive mood swings and sometimes a fever. These symptoms…

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April 8, 2017
Read more about the article This morning has completely fallen apart
General Update / My thoughts

This morning has completely fallen apart

We're not off to the best start today. Unfortunately, most of us are not feeling well. By most of us, I mean everyone in my family with an active immune system. Ironically, Gavin is the the only one who's feeling fine.  In reality, that's a good thing because the last thing in the world we want is for Gavin to get sick.  Nobody went to school today and we're all just going to take it easy this morning and see if things improve.  In regards to Emmett, I actually suspect he's in a fever flare. This explains his demeanor and level of aggression this morning.  Lizze can barely move today because of the weather. We went from a much warmer trend to this.  As for myself, I'm exhausted beyond words.…

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April 7, 2017
Read more about the article We have a really busy day today
My thoughts / The Day Ahead

We have a really busy day today

We have a really long day ahead of us. After dropping the boys off at school, we have to get a copy of Gavin's birth certificate from the Canton Board of Health. We can't find his for some reason and we need it cause in order to recertify this year, we have to prove that our kids are legal residents of the United States.  After that, we can go home for a short time before having to return to the school to pick up the boys and head to Cleveland for three doctors appointments.  The appointments are with Allergy and Immunology.  We'll be in the car for at least three hours, for what amounts to a thirty minute appointment.  The boys dislike these trips cause they're in the car forever.…

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April 6, 2017
Read more about the article Here’s some GOOD NEWS
Good News / My thoughts

Here’s some GOOD NEWS

While yesterday was a trying day, there was some really awesome news. We got our car back from the shop. My brother was able to get the ignition removed and replaced but it wasn't easy. The new ignition works like a charm and I'm so grateful for his help. I also was to say a huge thank you to my parents as well. They were a huge help as well and Lizze and I are both very grateful for that... My triumphant return to the driving world comes in the nick of time because we have to get all the kids to the doctors in the late morning. This is one of those out of town trips that will take us all day and this wouldn't have been possible without…

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April 6, 2017