My thoughts Archives - Page 395 of 1480

Gavin’s complaining of the weirdest thing today

Ever since Gavin was little, hes had a weird relationship with pain. It's been labeled a sensory issue but it's still weird. Back when Gavin was self-injuring in a major way, he would scratch his face open or punch his legs until he left giant bruises. He would never complain about these things hurting and they obviously should have hurt. At the same time, if he had a barely visible hang nail, he would freak out and react as though it was the end of the world. He's always been this way. This morning, he began complaining the webbing between his fingers was cramping up. It wasn't his fingers or hands either. He specifically pointed to the webbing and said it's cramping between each finger, and on both hands. WTF…

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April 18, 2017

My thoughts

Things got better after the massive meltdown

I was up with Elliott for most of the night. He was dealing with some congestion and doesn't cope well with that feeling. He woke up about 1am and we moved downstairs so he could more easily sit up. It took him a bit to get moving for school but once he did, he was feeling much better. Emmett on the other hand, was in a foul mood this morning and my ears are still ringing from all the screaming. After a relatively major meltdown, he seemed to feel better and we were able to move on with our morning. Both boys are currently in good moods and in school.. Unfortunately, it's Gavin's turn to not feel well. It's going to be a long day.....

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April 18, 2017

Heartbreak / My thoughts

Why my heart breaks for my oldest #SpecialNeeds son

With all Gavin has going on in his young life, he's blissfully ignorant to what it all means. In a way, that's a blessing. He's always so positive and looking forward to growing up. He's seventeen years old and he's looking forward to growing up. Gavin doesn't understand that there's a better than good chance, he will never be able to live on his own. He doesn't understand that he will never drive a car. As heartbreaking as it is for me to even say this, he will never get married or have kids of his own. 🙁 When Gavin says he can't wait until he's grown up, I don't know what to even say, except don't be in such a hurry to grow up.. Today he told me one…

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April 18, 2017

Autism Parenting Insight / My thoughts

Sometimes we just need a break from each other

At the time of writing (10:30 PM), there's a really good chance that both Elliott and Emmett will be going to school in the morning. This would be a hugely positive thing for us, because we need a fricking break already. The boys have been trapped in the house for most of Easter break because they've been sick. It's safe to say that we are all getting on each other's nerves a little bit and could use our routine back. With everyone being fever free at this point, it looks like our routine is on its way... ☺ We love our kids and we know our kids love us. That doesn't mean we couldn't use a small, school day sized break from each other... ☺ 💙

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April 17, 2017

Emmett John / Feeding Problems / My thoughts / Sensory

He won’t even eat corn dogs anymore

The continuing saga of Emmett no longer eating the things he historically has, keeps getting worse. In this latest chapter, he no longer eats his most favorite food of all time. There have been two goto foods that Emmett has always been able to eat, should all else fail. One is Little Caesars pizza, and second is corn dogs. Little Caesars pizza has become sorta hit or miss lately but he will still eat it warm. Unfortunately, corn dogs are no longer an option. We went through several the other day and none tasted right. Emmett's become very difficult to feed because nothing he eats tastes right to him anymore. He only regularly ate a handful of different foods and so losing anything is a major issue. It's really frustrating…

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April 17, 2017

My thoughts

It’s like the whole house woke up on the wrong side of the bed this morning

I'm waking up this morning to everyone being in a horrible mood. Emmett's screaming, Elliott's stressed out, and Gavin's forgetting everything, only to hit himself when he's reminded This is one of those days where it's going to take everything I have to simply survive. Elliott and Emmett are sick, which explains their current demeanor. Going to the park is out of the question because both are running fevers, and I'm not looking to make anything worse. I'm really, really trying not to get sucked into this negative mood that's imprisoned the rest of my family this morning, but at the moment it's a losing battle. My goal for the first half of the day is to find a way to change the crash course we're currently on. I'm not…

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April 17, 2017

Family Pets / My thoughts

The animals in our life

Let's focus in some positive things in this entry. Most of you know that animals play a big roll in our lives. Our pets are family and have had such a positive impact on the boys. Many families find that animals have a positive impact on their kids with Autism. In my experience, it's like our animals sense something different about our kids and demonstrate higher tolerances to being loved by the boys. They also seem to know when the kids are upset or stressed out and quite literally will seek that child out to snuggle. It's truly been a blessing for us. I thought I would share some recent pictures of the animals that we share our lives with, and ask you about the animals in your life... Is…

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April 17, 2017

My thoughts

Our Easter was derailed but we made the best of it

As I'm writing this entry, we have two kids who've come down with a respiratory bug. Elliott and Emmett are both not feeling well. Elliott was running a relatively high fever of 102.2°F. Emmett is showing the same symptoms as his older brother, but with added unpleasantness of still being inside of a fever cycle. Both boys have been moody, which is understandable, but it makes all the every day struggles that much more challenging. Thankfully, both Elliott and Emmett are asleep in their own beds, meaning I get to sleep in mine tonight. ☺ As a result of having two sickies in the house, we ended up canceling our plans for Easter. We could have split up, leaving Lizze and the boys at home, while Gavin and I went…

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April 17, 2017