My thoughts Archives - Page 388 of 1480

Here’s how the morning has been so far

The boys made it off to school today. Emmett struggled a bit this morning because he's nervous about returning to school after so long. He's also stressed out over his make-up work. We've been working on it while he was home but he still has quite a bit to do. The good news is that he's at school right now, and so is Elliott. The good news continues because Gavin and I finally made it back to the track. He was able to do 1.5 miles, at a decent enough pace. It felt real good to be back at it. ☺ Our goal is to take in the track a few days a week and the off days, I'll use the treadmill. Sadly, I can see Gavin struggling more and…

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May 9, 2017

My thoughts

I’m so close to getting the boys to school

I'm thinking that I'll be able to get both boys to school today. I'm being met with some resistance from Emmett, but it's more anxiety related. He hasn't been back to school in well over a week, and he's nervous about going back. Unfortunately, their clothes didn't dry and we're having to wait on the dryer before leaving. Lizze is already at class for the day, so Gavin and I are on our own. I think we will be walking the track and then visiting my grandfather around lunchtime. I'm hoping to get some writing done and then maybe some house work. I really, really need to get our routine back on track. It's been thrown off since Emmett began his latest flare. Even neurotypical Dad's need routine.. ☺

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May 9, 2017

My thoughts

Good News – Painful News

Both boys are home from school today, but they are doing better. I'm feeling pretty optimistic that they will be returning to school tomorrow. Emmett been working in his makeup work and Elliott has been resting. Gavin is doing good and currently sleeping off his morning meds. The only thing on the agenda today is getting Gavin's bloodwork done. We decided to wait until this afternoon, because Lizze needs bloodwork done as well and this way, we can kill two birds with one stone. As for me, I'm feeling much better. My only real limitation today is my back. I just have slept funny or something because my back is out. For the Lost part, I'm okay if I'm standing perfectly straight. Sitting or lying down really hurts. Trying to…

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May 8, 2017

General Update / My thoughts

I’m ready to quit the school year and here’s why

Here's a super quick update before I go to bed. As of midnight, I haven't a clue as to whether or not either of the boys will be in school. I've got Elliott with a fever and Emmett with worsening mouth sores, but no fever. When I say his mouth sores are getting worse, I'm referring to the fact that they have gone from being on his tongue and throat, to his cheeks, lips and gums. He may not be running a fever but he's in a great deal of pain. To make things worse for poor Emmett, some of these sores are constantly brushing up against his teeth. Gavin went to bed not feeling well. He has a low grade fever, and an upset stomach. Lizze's Mom pointed out…

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May 8, 2017

My thoughts

We’re dropping like flies

I woke up this morning with a fever. It wasn't too bad but it was 102°F and that usually means I'm fighting something off. I still had my headache from last night, and on the only day I was able to sleep in, my headache woke me up at 6 AM. Fast forward to this afternoon, and the boys came home. Elliott want feeling well and sure enough, he has a fever now as well. On a positive note, Emmett seems to be fever free. He's 99.5°F,which isn't a fever medically speaking, but that is the temperature the school sends them home from school. We're so close to getting Emmett back to school, I can taste it. Elliott on the other hand, will be home tomorrow. I'm not sure about…

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May 7, 2017

My thoughts

Why I’m not asleep at 3 AM

Lizze and I had a quiet evening tonight. Her parents ended up taking the boys, and that worked out well because I feel like shit. I'm not sure what's going on, but I just don't feel well. My stomach is upset and my head hurts. I fell asleep on the couch for awhile but it's now 3 AM and I can't fall asleep again. I don't know if this is a stomach bug or if it's the culmination of stress from the past week or so. It doesn't really matter because the end result is the same. I'm hoping to get some sleep tonight and be feeling better in the morning. It's really important to me that I at least make it to my parents reception around lunch time. It…

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May 7, 2017

Autism Parenting Woes / Emmett John / My thoughts / PFAPA

The struggle is real and so is the toll

I just woke up from a four hour nap. I feel a bit better but I'm far from being back in my feet. This week has taken so much out of me, but it's also been an unusual week and on that hopefully won't be repeated anytime soon. The fever disorder that Emmett struggles with has interfered with so much of his life already. It seems to literally dictated a large portion of it thus far, and that's not fair to Emmett. When these happen during the school year, it's far more distressing than having this happen during the summer. While I'm caring for Emmett while he's in a fever cycle, I'm not physically experiencing it myself. With that being said, I'm so exhausted from playing my part, I feel…

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May 6, 2017

Emmett John / My thoughts / PFAPA

What’s less than running on fumes

Emmett is in such a foul mood today. His fever is back up to almost 102°F and he's a nightmare to deal with this morning. Lizze and I are completely spent. We're so far beyond running on fumes, I don't know how to put this into words. All I want to do is go to bed and sleep forever at this point. Fat chance that's going to happen anytime soon.. Zzzzzzzzzzzzzzz

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May 6, 2017