My thoughts Archives - Page 368 of 1480

All that matters is that they get to go

The boys are gone, and on their way to the Akron Zoo with their Grandparents. That's a bit of mixed emotion for us, because we wanted to take the boys, but all that matters is that they get to go. We'll just take them to the Cleveland Zoo in a few weeks. As far as how Lizze and I are going to make use of the time, that's changed a bit. I was able to get some sleep after a sleepless night with the boys. As a result, I feel much better. Unfortunately, the same can't be said for Lizze. After eating lunch this afternoon, she's now sick to her stomach. This time is particularly bad and she's down for the count. It's a Gastroparesis thing, and will eventually pass…

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June 25, 2017

Autism Parenting Woes / My thoughts

I desperately need to close my eyes

I've decided what I'm going to do as soon as the kids leave for their Grandparents. Considering that I've been up with both Elliott and Emmett all night long, sleep is on the menu for the rest of the day. I'm so exhausted that I can't see straight. As soon as the boys leave, I'll be collapsing on my bed. This is the second night in row that I've been up with the boys all night, and I desperately need to close my eyes.

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June 25, 2017

Mommy and Daddy Time / My thoughts / Parenting Break

This can really take it out of an #Autism parent

Lizze and I will be getting a break this fine Sunday. The boys will be spending the day, and subsequent night with their Grandparents. It feels like we haven't had a night off in forever, but it's only been about two weeks. It's amazing how two weeks of raising three kids with Autism can take it out of a parent. I'm not sure what we're going to do with our time. Perhaps we'll catch up on some sleep. Maybe we'll go for a walk, or catch a dollar movie. The whole point is to have some time away from the boys and devoted to ourselves. We're so grateful for the time, regardless of how we end up using it. ☺

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June 25, 2017

Emmett John / Family Time / My thoughts

The 45 minutes of #meltdown HELL

Lizze and I took the boys to the park tonight. We even got them to walk over a mile. That may not seem like much, but sometimes it's actually a major accomplishment. Everyone did awesome while we were there, but we almost didn't make it there in the first place. Emmett had a massive meltdown prior to actually leaving because he was freaked out over his shoes. He couldn't decide which pair was going to bother him less. This went on for so long that I almost gave up on going altogether. It took forever to work through this one, because he was so upset. He wanted to go, and was even more upset because he couldn't go unless he made a decision. We tried for close to 30-45 minutes…

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June 24, 2017

Family Time / My thoughts

Will this end the day on a positive note?

I think Lizze and I are going to end the day by taking the kids to the park for awhile. Elliott seems to be feeling better and wants to go, as does everyone else. Elliott and Emmett will hunt Pokémon, while the rest of us walk the track.. We're all walking the track, but some are chasing Pokémon at the same time. This will hopefully be a nice way to end the day on a positive note. So long as Emmett will wear something on his feet, we should be good to go. In the morning, the boys will be going to their grandparents to spend the night. Even if things don't go well tonight, we just have to survive until noon tomorrow.. ☺

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June 24, 2017

Elliott / My thoughts

Elliott’s dealing with frequent hesdaches

Poor Elliott is fighting off another headache. He's been getting these more and more frequently. Lizze has a long sorted history with headaches/migraines, so it's not too surprising that Elliott is as well. The difference is that nothing helps Lizze's migraines because they are believed to neurovascular in nature. Elliott seems to respond well to Advil. I'm not sure what's bringing these things on for him, but not drinking enough water is pretty high on the list of possible causes. A good thing to come out of this is that Elliott's becoming more aware of what not drinking enough water can do, and he's drinking water more regularly. In what could be an unrelated note, Elliott's also running a low-grade fever as well. Perhaps the two are connected? Either way,…

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June 24, 2017

Autism Parenting Insight / Gavin / My thoughts

I’ve officially applied to Make A Wish for my son

At 2 am this morning, I was unable to sleep. I've got many things on my mind and I couldn't shutdown. One of those things weighing heavy was this whole Make-A-Wish thing for Gavin. I began the process after Gavin's immunologist suggested we apply last year. The process halted for a variety of reasons, but two reasons created the most friction. The first of which was Gavin didn't want to do anything. If he was unwilling to participate, there's no point in continuing. The second reason was more emotional on my part. Knowing your child qualifies for Make-A-Wish is a doubled edged sword. On the one hand, it's such an amazing opportunity for Gavin. On the other hand, he qualified in the first place. To qualify, things have to be serious about…

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June 24, 2017

Gavin / Heartbreak / My thoughts

He’s getting worse and I can’t hide from that truth anymore

It's becoming more and more difficult to pretend that Gavin's not getting worse. I know he's never going to get better, and that's something both my wife and me have come to accept over the years. While I've accepted that fact, it's not that cut and dry. Gavin's in an almost constant state of decompensation. Sometimes it's a slower process, and harder to pick up on, while other times, it's pretty rapid. One of the main issues revolves around his memory. I tend to want to rationalize it by saying something like, he's just having a bad day or everyone forgets things. The truth is, it's not normal to forget things like Gavin does. It's not normal and it's not a good. Here's the latest example of what I mean.…

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June 24, 2017