Elliott and I went for a walk

Elliott and I went walking by ourselves. Emmett didn't want to go and Gavin was laying down. Lizze stayed home with the kids, so Elliott and I could still go.  It was really nice spending time with Elliott. We walked about a mile and a half, and he talked the entire time. I just listened and jumped in when it was appropriate. lol Elliott's a talker. There's no two ways about it. He has a lot to say and it's tough to listen when there's so much going on in the house. Elliott was able to explore some creek banks and collect some rocks. He loves doing that.. ☺  I'm hoping it helped him to get all that out and not have to compete for a listening ear. I had…

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The calm before the storm

It's been a super quiet day so far and I'm loving it. ☺  The boys had a great time with their Grandparents and they came home a few hours ago. Everyone is getting along and that's always a good thing.  We have zero plans for today and that's nice as well. It's going to be a busy week, beginning with a doctor's appointment for me, occupational therapy, and ending with the first day or school and Gavin returning to the Cleveland Clinic.  Also, we are supposed to begin making the plans for our Florida trip. 

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Emmett and I had a great time

Yesterday, what began as a potential family trip to the movies, ended in Emmett and I going by ourselves. I was going to take everyone to see Transformers at the dollar movies, until I realized that Gavin wouldn't be able to go. Sticking Gavin into a potentially crowed theater, is a no go. Even I still forget these limitations from time to time. Gavin was super cool about it and Elliott didn't want to go anyway. Emmett on the other hand, had his heart set on going. Lizze suggested that she stay home with Gavin and Elliott, while I take Emmett. Emmett and I ended up have a great time and bought some popcorn after the movie, and brought it home for everyone who couldn't go. While I wish we…

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Difficult decisions

The boys are spending the night at their Grandparents house. We opted to keep Gavin home with us because they were going to a large family gathering, and we're avoiding Gavin being places like that until after we see the hematologist. Lizze and I had been looking forward to going, but that was before we learned about Gavin's newest medical problems. We talked about having him hang out with my parents but they were unavailable. We both wish things were different, but this could quite literally be a life or death thing. If his numbers dropped again, and we didn't know, it's could be very serious. We are choosing to error on the side of caution. Making these types of decisions, are not something that everyone will understand. Frankly, nobody…

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Super Major Update and Awesome News

I wanted to let everyone know a big thing happened while we were at Gavin's immunologist last week. I already mentioned how we discussed his labs and why his numbers keep dropping.  What I didn't tell you is that his immunologist cleared him for our trip to Florida. ☺  There's a great bit of detail that I'll save for another post, but the bottomline is, Gavin will be able to make the trip. That was something we were concerned about but also holding out hope that it would be okay.  Like I said, there's more to the story, but it's really late. I will say this.  There is a great deal of concern over Gavin's health, but his numbers, while still low, are out of the immediate crisis zone for…

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Gavin’s IVIG infusion was a success 

Gavin had his IVIG infusion last night, because we were gone for most of the day. He did really well both during and after his infusion. Aside for physical exhaustion, there weren't any side effects that I was aware of.  Like I said, he was exhausted afterwards, and went to bed shortly after the process concluded.  Gavin looks a bit run down, but isn't complaining of anything, not that he really ever does. As far as I know, the only issue he is struggling with today is that his hip popped out once again. My understanding is that hurts like a bitch.  I'm not making any plans for today because I want him resting, especially because of how run down he appears to be. 

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General Update: Here’s what happened

You've probably noticed there's been some downtime here over the last day or so. I apologize for not making a general announcement prior but I migrated to a brand spanking new server. I was approached by a new host awhile back and over the last six months, we negotiated a deal I couldn't refuse.  The move was necessary and now that I'm are back up and running, things are so much better.  One downside is that the support forums are gone for now, and they won't be back up for a little while. I'll have to pay for a new service every month and I'm not sure what I'm going to do yet.  At this point, I'm dealing with monthly service fees again. My sponsorship is up and I figured…

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We are supporting Wishes Can Happen this morning

We have a very busy day. Lizze has an appointment first thing in the morning. The boys and I will be dropping her off and then heading to a fundraiser for Wishes Can Happen. Thursday and Friday they are having a Wish-A-Thon to raise funds to grant wishes for kids like Gavin. One of the local radios stations is sponsoring it and helping to raise money. If you're interested in supporting this amazing cause, click here to learn how. All money raised goes to funding wishes for kids with terminal or life threatening conditions. I promised I would do my best to stop by in the morning to show support. It's such a worthy cause and as long as nothing catastrophic happens, that's what we'll do. After that, we have to swing…

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