My thoughts Archives - Page 337 of 1480

Here’s an update

It's been such a long day. The boys were picked up bright and early by my Mom, and Lizze and I were off to the hospital. Her Dad has been in surgery for most of the afternoon. We were sent home after awhile but everything seemed to be going well. Apparently after this type of surgery, they keep the patient completely sedated for at least twenty four hours after. I'm intentionally leaving this vague because Lizze will have a more detailed post when she's feeling up to it. Check here. Speaking of Lizze, she's having a bit of a rough time with all of this. She's not slept well but is currently sleeping right now. The boys are at dinner with my parents and will be home in a little…

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August 31, 2017

Gavin / My thoughts

Gavin’s driving me crazy because apparently, I’m not stressed out enough already

I'm going to try and keep things on track and if you're looking for updates on Lizze's Dad, please check here. If Lizze isn't up to it, she may ask me to convey her thoughts. Having said that, while we haven't noticed any changes in Gavin's behavior yet, his typical behavior is overwhelming enough already. Gavin's truly the sweetest kid, and I couldn't be any prouder of him. At the same time, he's been driving me crazy (yes, I know that's a short trip). I love him dearly but he will not stop talking. He's in one of those places where I'm not sure he even realizes that he talking outloud. Lately, he's been verbalizing every thought that comes into his mind. There's some strange shit that goes through his…

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August 31, 2017

My thoughts

When it comes to family, we do what we have to do

Our week has been re-prioritized in the wake on my father in laws heart attack. My Mom is going to be taking the boys to school and then hanging out with Gavin. This is a huge help because we need to get back to the hospital as early as we can. Right now, what matters most is rallying around our family and being there for whatever is needed. The boys are aware that Grandpa's sick and in the hospital getting better. They don't need to know any more than that at this point, and frankly, the only reason we said anything is because they overheard someone asking how her Dad was doing. They seem to be doing okay with it and that makes it much easier for us to redirect…

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August 31, 2017

Clozapine / Gavin / My thoughts

We haven’t noticed any changes yet

Today was the first day that Gavin's Clozapine was reduced to 500 mg/day. Lizze and I haven't noticed any changes yet and that's to be expected. I believe Clozapine has a very short half-life, meaning it doesn't linger and needs constant maintenance doses. I would expect that if we are going to see any changes in behavior, we will see it over the next few days. If we don't see anything by the middle of next week, it's probably safe to say the reduced dose isn't negatively impacting his Schizophrenic symptoms. I've put my eggs in that basket because I'm not sure the Clozapine is doing anything anymore. Time will tell. Outside of that, the only issue Gavin was having today was pain in his legs. I'm not sure what that…

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August 31, 2017

Emmett John / My thoughts

This morning was stressful AF

We spent all morning listening to Emmett screaming. If he wasn't screaming about one thing, he was screaming about another. It's not the best way to start out the day. I've no idea why he was so out of sorts this morning, but it was awful. He did get off to school with Elliott but when we got to school, he realized he forgot his lunch. After I go for my walk, I'll have to make a return trip to the school to drop off his lunch. At this point, I'm so stressed out and I'm hoping a good walk will be just what the doctor ordered, in more ways than one.

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August 30, 2017

Clozapine Crisis / Gavin / My thoughts

I’m hopeful this will produce a positive outcome

Beginning today, Gavin will be on a reduced dose of Clozapine. We will be dropping from 600 mg/day, down to 500 mg/day until we return from Gavin's wish being granted by Wishes Can Happen in October. We don't want any medication changes to take place during the trip for a million reasons, one of them being we want Gavin to have fun. There's no way to really predict how Gavin is going to be reacting to this change in medication. We may see an increase of Schizophrenic symptoms, including a return to more dark and concerning behavior. We may also not see a change at all, and that will basically tell us, at the very least, he doesn't need the higher dose. If there's no change, we will continue to…

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August 30, 2017

Lizze / My thoughts

How we ended a very stressful day

It's been a really long day and I haven't written much because I'm really tired. It's been an emotional roller-coaster today with all things Gavin. Rather than focus on that, I wanted to share how our day ended instead. After getting the boys to finally go to bed, Lizze and I settled in to watch a movie. I've been dying to see Wonder Woman but I couldn't get Lizze to go see it. It didn't interest her in the slightest, so I didn't push for it. It was released on Google Play yesterday and I've had it pre-ordered for awhile. Lizze begrudgingly agreed to watch it with me last night. She wasn't super excited about watching it but she was doing it for me. ☺ After about fifteen minutes, the…

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August 30, 2017

Clozapine Crisis / Gavin / My thoughts

The decision has been made

We just got out of Gavin's appointment, and my God it took forever. The two and a half hour wait sucked but I can't really complain because they squeezed us in. This appointment was purposed to discuss Gavin's medication, specifically the Clozapine and it's impact on his health. I'm exhausted after all of this, and I'm going to make this as quick and painless as possible. After discussing the possible options, we opted to go with Lizze's approach because it was the most conservative, and it was also a really good idea. ☺ Basically, we are reasonably sure that the Clozapine is at least one of the contributing factors to Gavin's blood related issues. If fact, it's likely to be the biggest overall factor but there are also other things…

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August 29, 2017