My thoughts Archives - Page 313 of 1480

Autism Parenting Struggles / My thoughts

I’m so incredibly worried, overwhelmed and stressed out

We had a pretty nice evening, especially considering how stressful of a day it was. Lizze is sick and not doing well. Her cough is bad and she's in a lot of overall pain. She's only been on antibiotics for a couple days, so she should be feeling better in the coming days. Gavin is a hot mess. He's all over the place and absolutely struggling with nearly all areas of his life. I'm extremely worried about this new-ish unknown blood disorder and we are waiting for the referral to Hematology. Poor Gavin's Schizophrenia is definitely worsening since the reduction of his meds but there's no choices at this point. Let's not forget Elliott. Most of my morning was spent focusing on Elliott. He was at the pediatrician because he…

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October 28, 2017

Elliott needed a chest x-ray this morning

Elliott's appointment took about two hours and he did about as well as he does at any doctors appointment. Elliott has never been comfortable at the doctors, any doctor for that matter. He gets extremely anxious and that using leads to a meltdown, or at the very least, tears. In a nutshell, his appointment when well. We're waiting for the results of the chest x-ray that is ruling out walking pneumonia and that's about it. He doesn't have strep and shows zero signs of being sick other than running the fever. The only reason they did the chest x-ray is because he's had walking pneumonia on a few occasions in the past. It's looking like we are moving in the direction of what Emmett's dealing with, a rare fever disorder.…

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October 27, 2017

My thoughts / PSA / Sponsored Post

Colgate and MagnusCards helping Special Needs kids with oral hygiene #ColgatePartner

This post is sponsored by #ColgatePartner and is intended to share my family’s experiences using their oral hygiene social stories to help our kids with Autism maintain good oral hygiene. Being an Autism parent is full of many challenges. We all face a unique set of circumstances, but there are usually a few common threads that tie us all together. One of the challenges my family faces is regarding helping our kids with Autism learn personal hygiene. In my experience, with my kids, personal hygiene is something that doesn't seem to come naturally, especially with my oldest. One of the most essential elements of personal hygiene is maintaining good oral health. This has always been problematic because my oldest struggles with a lack of self-awareness and reduced memory function. He…

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October 27, 2017

Elliott / My thoughts

We have to make sure everything is okay

Emmett had a great morning and it currently at school. Elliott is still home sick and is currently sitting next to me at the pediatrician's office, waiting to be scene. I don't know what's going on with him but we just want to make sure everything is okay. I'm absolutely exhausted and ready to crash.

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October 27, 2017

Clozapine Crisis / Gavin / My thoughts

Clozapine Crisis: Here’s what happened today

We have a plan of attack for how to deal with Gavin's current mental and physical health problems, at least temporarily. The reason I say temporarily is because the particular plan of attack is only until we can finally get into Hematology at Akron Children's Hospital. Let me start with how the appointment with Dr. Reynolds went. It's clear that Gavin's having serious problems and it's at least partially related to the Clozapine. Let me be more specific. The issues with Gavin's blood are at the very leastade worse by the Clozapine, if not completely caused by the Clozapine. At the same time, the overall cognitive and neuro-muscular decline are most likely a result of Childhood Disintegrative Disorder. In other words, it's not related to the Clozapine. I mentioned we…

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October 27, 2017

Emmett John / My thoughts

I told Emmett how proud of him I was

Update: This was supposed to publish a couple days ago. Not sure what happened but better late than never. ☺ It's no secret that I'm always proud of my kids, because I don't hide it very well, and I make it a point to tell them. It's important to me they know that no matter what, I love, support and am proud of them. Today was one of those days where I wanted to make sure That Emmett knew how proud of him I was. This morning was a nightmare, I'm not going to sugar coat it. Emmett had an hour long, massive meltdown over his crocs feeling funny. It's true he was late to school and that our day got off on the wrong foot as a result. Having…

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October 26, 2017

Clozapine Crisis / Gavin / My thoughts

The moment of truth and I feel sick to my stomach

Lizze is home sick with Elliott, who's still sick. Gavin and I are in the waiting room at Dr. Reynolds office. I'm so nervous about this appointment because I know what we're looking at and neither option is good. Gavin's chillin on the couch playing his tablet as he's waiting and I'm trying not to puke all over the floor. My anxiety is so high over this that I'm sick to my stomach. I want so badly for this to be over with and resolved. Gavin deserves to be safe, happy and healthy.

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October 26, 2017

Clozapine Crisis / Gavin / My thoughts

Please keep us in your thoughts and prayers

The doctors office called this morning with Gavin's lab results and they were correct the first time. All his numbers are down and it's not looking good. Please keep Gavin in your thoughts and prayers. Maybe keep Lizze and I in there as well because we have some very difficult decisions to make this afternoon. Trying to stay positive.

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October 26, 2017