What it requires to BE a Special Needs Parent and what it requires to HELP one

In my family, we don't experience too many situations that fall into the normal category. With special needs kids, normal is something that we have almost no comprehension of. Normal is a subjective term anyway and it's going to be different for everyone. It's because of the above reasons, so many special needs families struggle. It's hard to find help for situations where unless you've lived it yourself, you can't possible truly comprehend. This is where the whole walk a mile in my shoes, cliché as fuck phrase, applies incredibly well. I run into that quite frequently in my life. There's a surprising amount of well intentioned people in the world (which is a good thing) who want to help but don't seem to grasp that the obvious solution doesn't…

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The number one source of stress in my life right now

I'm so incredibly frustrated today because for the millionth time, the pharmacy hasn't delivered or even filled Gavin's Clozapine prescription. I don't understand why this is so fucking complicated. Out of all the medications a pharmacy can fill, Clozapine is the most tightly controlled by a mile. One would think that they would have a procedure for filling it. My job is to make sure that Gavin's blood work is done once every seven days. The labs job is to fax the results to the pharmacy. The pharmacy must then fax the results to REMS. REMS will grant the pharmacy permission to release seven days worth of pills. This process repeats every single week and as long as everyone does their fucking job, we can continue to give Gavin his…

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Why I was so worried about Emmett yesterday

I was worried about how Emmett's day at school was going to go because the kid that stabbed him last week was returning from suspension. Lizze and I spoke with the school to ensure that procautions were taken in order to make sure Emmett would be safe. When I picked Emmett up at the end of the day, he said that this kid was back to his old self. Emmett said he was back to being my same old friend. The school is going to be keeping a close eye on the situation for the near future but at this point in time, it looks like things have been resolved. Emmett's happy to see his friend doing better and that's a good thing. Hopefully, this will not be something we…

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I finally have some really awesome news to share

I want to take a second and share some good news. Facebook has verified my account and I now have the much sought after blue check mark next to my profile picture where ever it appears throughout Facebook. I'm now verified on both Facebook and Twitter. It's so cool and I'm really excited because it increases credibility on social media. I don't know that this will have any impact on my Facebook stalkers ability to continually try to get me banned from the social media platform but we'll see what happens. Either way, I'm excited and it feels nice to reach this milestone in my growing social media presence. ☺ I'm so grateful for all the support from my readers and followers because you keep reading what I write. ☺…

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I don’t think we overreacted but how would you handle your child being stabbed multiple times with a pencil at school?

Lizze and I had a long discussion last night about how to handle the kid that stabbed Emmett because he was returning to school today. We were nervous because we didn't know what was going on or how to ensure Emmett's safety. We decided that there was at least one main thing we would insist upon for a period of time. Assuming that everything else is in check with this kid and he's allowed to return to school, we want him and Emmett separated until we know this kid is no longer a risk. I read a couple comments suggesting that boys will be boys but in my world, it's not okay that Emmett was stabbed four time with a sharpened pencil. It was bad enough to puncture the skin…

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The kid who stabbed Emmett with a pencil is returning to school today and I’m not sure what to think

Emmett will be returning to school in the morning because it's Monday. Normally I wouldn't be worried but this will be the first day that Emmett will be back in school with the kid who stabbed him. I feel that it would be irresponsible of me as a parent, to simply let him walk into the building without talking to the school first. I need to find out what's being done to ensure this kid isn't going to hurt Emmett or anyone else for that matter. I've mentioned before that this kid isn't evil, and he isn't. Something was going on with him however, that led to him stabbing Emmett several times with a sharpened pencil. Emmett's hand is healing pretty well, as you can see in the above image.…

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Yes, I know hate is a strong word

It's been a long day and it started super early. I'm talking 4 AM early. Emmett is once again going through a difficult period of time at night and is waking up from really bad nightmares. He runs into our bed and glues himself to me. We have a king size bed but Emmett likes to take up most of it. Putting him back in bed is an exercise in futility because he's too afraid to go back to sleep. Rather than fight that losing battle, I simply move downstairs to the couch. This way Lizze sleeps, he sleeps and I have a chance at getting some sleep as well. The best approach in this particular situation, especially when Emmett's concerned, is to address the underlying issue. The nightmares are…

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Happy Birthday 12th Elliott

It was twelve years ago today, that I experienced the most amazing and most terrifying moments of my life, at least up to that point. Mr. Elliott was born on March 4, 2008 after a very difficult pregnancy. Lizze was nothing less than a hero for how hard she fought to bring him into this world. I remember the moment he took his very first breath, as well as the moment I heard his lung burst. What followed was the scariest seven days in my life. Elliott fought though bilateral pneumothorax and bacterial pneumonia, to become one of the strongest, sweetest and most compassionate people I've ever known. We have our struggles but I love him to the moon and back. I wouldn't trade him for anything in the world…

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