I’m going to be doing this for the rest of my life and that’s scares the crap out of me

I love Gavin. I truly love Gavin. At the same time, the idea of having to deal with his challenges for the rest of my life is scary. I just dealt with a problem and he's still upstairs freaking out. Here's what happened. Gavin came out of the kitchen and told me that he needs to wash his water bottle again because the water tastes bad. I asked him what happened and he couldn't explain it. He had just washed his water bottle earlier today and he was unable to figure out why it rated so bad. As soon as he said that, I knew what had happened. Rather than letting him struggle to figure it out and end up melting down, I wanted to help him work through the…

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No sleep for those who desperately need it

I've been having a very difficult time sleeping for the past few nights. Sometimes it's because Emmett wakes up and other times it because of my allergies. Last night I ended up on the couch in the living room because I was able to breathe better. Breathing better makes sleeping easier for me. The air on the second floor is very dry. I'm constantly running our humidifier but it doesn't seem to really seem to help. The humidity on the first floor is much higher and I was able to fall asleep for a little while. I'm so fricking tired right now and all I want to do is crawl into bed. Unfortunately, my schedule will not allow for that today. I'm going to drop the boys off at school…

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The last time we were here, we received devastating news

Today is going to be one of the biggest days we've had in awhile, at least as far as Gavin and his health are concerned. Gavin finally gets back into Gastroenterology. We've finally come full circle and I'll explain why. It's been awhile since he's been seen and that's only because we were basically overrun with unrelated, but life-threatening health issues that took priority. Gastroenterology was actually what began a huge part of our journey. We made it to one appointment and within a week of that appointment, the Gastroenterologist called, telling us we needed to get Gavin into Immunology immediately. In fact he'd already made the appointment for us. He's the one who discovered Gavin's severely compromised immune system. From there it was a diagnosis of Common Variable Immunodeficiency.…

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I’m so tired of fricking #meltdowns

There isn't anything I know of that can prepare some for the reality of Autism related Meltdowns. They're awful for everyone involved, especially the person physically experiencing one. At this point in time, Emmett is the defacto meltdown maker in our house. Gavin's making a comeback and that's incredibly unfortunate because he presents with many safety issues. Emmett is having another meltdown right now. It began the moment he climbed into the car and has continued since we've been home. Lizze has tagged in and taken over so I can collect myself before re-engaging. I don't know what really triggered this. It could simply be that his day has taken a great deal out of him. It could be sensory overload or nothing at all. Meltdowns are the bodies way…

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Hopefully I’ll end the day on a positive note

I'm hoping for a nice quiet afternoon/evening. I've got my walk in this morning, skipped my nap and got some work done. I had a job to finish up this afternoon, before I could submit my invoice. That's always a good thing.. ☺ I spent some time cleaning up the site. You notice a revised logo in the header but the rest of the work was on the backend. There are now almost 1,100 pages of posts and that requires maintenance to keep it running smoothly. Unfortunately, I have to do that on my own and means I have to teach myself a ton of server related things. The good news is, I'm learning and the even better news is that I've been able to fix everything I've broken. ☺…

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#Discussion – Does your child with #Autism do chores?

I'm getting ready to pick up the boys from school in a little but and I thought of something I wanted to ask you guys. If you're an Autism or Special Needs parent, does your child with Autism or other Special Needs do chores around the house? If they do, when did they start doing them and what kinds of chores do they do? If they don't, is there a reason? People ask me all the time about this and I thought it might be beneficial to all, if we talk about it.. ☺ Please leave your thoughts and or opinions in the comments below. I look forward to hearing from you..

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One way I practice Self-Care

The boys got off to school on a good foot and thankfully, Elliott is feeling better also. Aside from being exhausted, things went well. I took the boys to school and on the way home, I summoned up enough energy to hit the track. I didn't set any records but I showed up and walked. There was no part of me that wanted to do that but I know I need to make that a habit once again. I'm already losing weight at a decent pace since dropping the Paxil. Walking in the morning is not only good for my body and mind but also my soul. With all the stress I endure each and every day of my life, I need this time to let everything go, even if…

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No sleep makes everything more difficult

It was a rough night, filled with no sleep. I had a terrible time sleeping because my allergies were bad. It's like as soon as I lay down, I get congested. Shortly after I managed to fall asleep, Emmett came into our room after having another nightmare. Once I woke up, I was pretty much done because I was too congested to fall back asleep again. I was lucky to have fallen asleep the first time and not lucky enough to fall asleep a second time. It's going to be one of those days where I come home from taking the kids to school and crash for a few hours. I'm so fricking exhausted right now and Lizze isn't any better off. She's been battling insomnia lately and not sleeping…

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