My thoughts Archives - Page 242 of 1480

This is what #Schizophrenia looks like to my family

Over the years, I've tried to document the many things we deal with as a special needs family. It's important to me that I help to educate the public because there will come a time where I will no longer be here and I take a small comfort in the knowledge that my efforts today might make the world a more forgiving, understanding and compassionate place for my kids. That being said, I wanted to share this video I shot a few years ago. It shows Gavin, who's living with Schizophrenia, talking on an imaginary phone. This video is approaching 1,000,000 views and one of the more frustrating comments I see in regards to this particular video is that he doesn't have Schizophrenia, he just has an active imagination. The reality…

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May 5, 2018

My thoughts

I broke down and bought a new carpet scrubber

My claim to fame for today has been scrubbing the carpet. That's my major contribution to society, at least the members of society that use our upstairs, carpeted bathroom. :-) There are many things I hate about our house. I hate the squirrels that keep breaking into our attic. I hate that there are so few power outlets in the bedrooms. I hate that there are no shutoffs for most of the waterlines throughout the house. I even hate that it's so hard to fix things because the house is so old and hasn't been repaired properly in the past, making it incredibly expensive, as well as challenging to make repairs today. Having said all that, one of the biggest gripes I have about this house is that there is carpet…

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May 4, 2018

Elliott / Emmett John / My thoughts / The Little Things

A little routine I have with my kids on the #Autism Spectrum

Everyday, I arrive at the school about an hour early, start the parent pickup line and enjoy the quiet. I've been doing this for years. During the before (what we call the 2 year separation), this was really important because the kids were struggling and they felt reassured to see me there early each day. It was important to me that always know I was there for them, especially in those darker times. That was a long time ago and I continue doing this today. It's become something of a routine for me and one that it's beneficial to my sanity. It's part of my self-care routine. I enjoy parking in the shade, basking in the quiet and either reading or writing for an hour until the boys are released…

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May 4, 2018

My thoughts

I wasn’t doing so well this morning

I had a rough night trying to sleep. It's all allergy related but it still makes sleeping very difficult for me. Lizze was kind enough to get the kids to school this morning. Actually, it was only Emmett because Elliott is quite clearly not feeling well. Anyway, I'm feeling much better after getting some sleep. There's not really anything on the agenda for today. I might try and work out in the yard if I can. As crazy as this is going to sound, we've not heard gunshots during the day in awhile. We hear them at night quite frequently but it's been relatively quiet during the day. This helps me feel a bit safer, should I decide to try and get some yard work done this afternoon. Gavin's doing…

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May 4, 2018

My thoughts

This almost never happens

All in all, it's been a pretty good evening. I made a decent dinner and since Elliott and Emmett were still at my parents, I only had to cook one time instead of multiple times. Not only that, but everyone left in the house ate it. ☺ This almost never happens but I'm grateful when it does. I grilled some chicken breast and baked a couple sweet potatoes, along with steaming some green beans. It was pretty darn good if I do say so myself. The one problem we did have occurred after the boys came home, and that was bedtime. Emmett flat out refused to go to sleep because he's afraid of having another nightmare. It took quite a bit of effort and patience to get him down for…

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May 4, 2018

Autism Parenting Struggles / Gavin / My thoughts

I hate seeing him upset like this

It's been a rough evening thus far, and it's only 6:30 PM. Gavin has had several freak outs since we've been home. A freak out is not the same thing as a meltdown because they typically don't last as long. Basically, this is what we call it when Gavin gets really upset over something and begins hitting himself or comforting his body. These things can occur during a meltdown as well but meltdowns typically involve screaming and a significant amount of emotional purging. When Gavin freaks out, it's usually because he's pissed off or frustrated over something. These incidents didn't last more than a couple minutes a piece but those few minutes are exhausting because we never really know what's going to happen. The reason he was freaking out was…

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May 3, 2018

Akron Children's Hospital / Gallery / Gastroenterology / Gavin / My thoughts

Here’s what happened at @AkronChildrens today

We ended up not seeing the doctor we thought we were supposed to and while we were initially thrown off at first, we really like the new one.. There was a great deal of information but I'm going to make this as quick and concise as possible. Basically, there are at least a few tests that need to be done but there are some complications. We don't really know anything until this testing gets done. Unfortunately, because of Gavin's immunological problems, specifically the Neutrophilia, there's a significant increase in risk of infection from the procedure and until that's resolved, they won't do it. If he was having life threatening gastro issues, they would do it immediately and regardless of his ANC. She explained that what Gavin's needs is semi-elective at…

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May 3, 2018

Akron Children's Hospital / Gastroenterology / Gavin / My thoughts

We’ve arrived at @AkronChildrens Hospital

While the insane amount of never ending construction didn't make it easy, we have arrived at Akron Children's Hospital. Gavin's all checked in and we're waiting to be called back. It's really a strange feeling being back after all this time. Between Gavin and Emmett, we've spent so much time in this amazing hospital but it's been a minute since we've had to return. It's quite nostalgic to be here today.. I'm hoping this is going to be positive.

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May 3, 2018