My thoughts Archives - Page 211 of 1480

We seriously need to get caught up and here’s why

Disclaimer: my brain is fried and I'll proof this in the morning.. It's been a long couple of days. Friday we had Vivint at the house all day and Thursday we had Spectrum out for the second or third time in the last week. While it was stressful but I think we got everything finally buttoned up. Our internet has been working for about three days straight but the kids were complaining it was offline yesterday morning. It was working when I checked, so we're going to run with it. Gavin's been very, very, very, very challenging this week. We're having problems with him telling us about health problems he's having. It's like he processes things all wonky because the stuff that doesn't matter, we hear about all the time.…

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August 19, 2018

Emmett John / My thoughts

I’m sleeping on our dilapidated couch tonight

It's been a crazy day today and I've not been able to write anything. Vivint was here for a good chunk of the day and while it's always a positive experience, it can be a bit trying on the kids. Anyway, Emmett's been struggling with an increasing level of anxiety recently. We've seen an uptick in tummy aches and nightmares as we get closer to the new school year. Emmett really isn't capable of expressing how he's feeling and so we're left to try and figure this out on our own.. The last few night, Emmett's really struggled to fall asleep at night because he's afraid he'll have another nightmare. Tonight was so bad that I opted to simply set him up on the love seat in the living room,…

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August 18, 2018

Gavin / My thoughts / Wishes Can Happen / YouTube Video

The heartbreaking reason I support wishescanhappen.org and so should you

Sharing our heartbreaking story played a small role in Wishes Can Happen raising $213,946.00 over the 2 day Wish-A-Thon. That's enough to grant for than 40 wishes over the next year.

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August 17, 2018

Autism Parenting Insight / My thoughts

@GetSpectrum has to come out again and this is why it’s upsetting my kids with #Autism

The kids woke up this morning and all was well until they learned that Spectrum had to come back out again because there's an apparent problem in our lines somewhere. I didn't think it was a big deal and that as the person dealing with this directly, I was the only one frustrated. I was wrong. Very, very wrong. Elliott and Emmett have been stressing out all morning since learning another service person was coming by to fix the problem. We didn't know about this peoblem until we were told last night and so they were long asleep before an appointment was scheduled. Emmett is in a horrible mood because he doesn't understand why it takes so many tries to get something done correctly. He's such a logical person and…

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August 16, 2018

Autism Parenting Insight / Gavin / My thoughts

This happens every single night, without fail

Every single night, no matter what's going on or how bad of a day I've had, I can always count on Gavin's bedtime routine. ☺ Part of that routine, is asking me if he can show me his city. By that he means he wants me to look at the progress he's made on one of his tablet games that day. I try to always oblige him because showing me his progress in the game is the equivalent of scoring a winning goal for him. He's really proud of himself and it only feels right to let him feel a sense of pride. Truthfully though, I don't know the difference between what his city looked like yesterday vs today. It always looks the same to me but he's happy so…

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August 16, 2018

My thoughts

This has been a huge problem for almost 2 weeks now

I hesitate to say this out loud but I think we finally have our internet problems addressed and it only took about two weeks to do so. 🙄 About two weeks ago, we had to upgrade our internet plan. The bandwidth was insufficient for our needs and it was causing a lot of problems. The upgrade itself wasn't very costly, so it was something we could pull off. Anyway, it ended up taking three or four trips to the Spectrum store to swap out defective modems and routers and if you've ever been to one of Spectrums stores, they are a nightmare. On top of those four trips to the store in order to swap out equipment, we had three or four service calls, countless hours on the phone constantly…

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August 15, 2018

Gavin / My thoughts

I’ll admit it, I’m guilty of this

I'm trying to focus on the positive things we have going on right now. Admittedly, that's not easy to do because the struggles are seriously overwhelming. Gavin in particular, struggles quite a bit and it's both insanely frustrating and utterly heartbreaking, all at the same time. Trying to get Gavin to remember even simple one steps tasks is an uphill battle. It doesn't matter how much I love him, it's really, really frustrating because I have to micromanage his life. Having said that, it's really cool that I noticed this tonight and I wanted to share it with you all because it's a perfect example of when I get so wrapped up in the struggle, I can miss the obvious victories. It's true that Gavin struggles tremendously with his memory.…

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August 15, 2018

Gallery / My thoughts

I’m thankful it happened but I’m heartbroken that it’s necessary

I've been sorta struggling a bit lately but I'm feeling pretty good today. I ran into an old friend from high school and it was awesome catching up. It was one of those things that was unexpectedly random but it changed the course of my day. 😀 Anyway, I wanted to catch you up on a few things that I'm behind on. In my opinion, these are really positive things but at the same time it's heartbreaking that it's a necessity. Maybe you remember that we've been trying to get Gavin into Hematology for the better part of a year. He was referred by his immunologist because of his on again off again neutralphilia. We have no explanation for that or the sudden, random drops in his platelet counts as…

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August 14, 2018