My thoughts Archives - Page 199 of 1480

I’m not really angry because I screwed up

It's Monday and that means Gavin should be receiving his IVIG infusion. In fact, it should have already been done. Unfortunately, we're still missing supplies. I talked about this last week and explained the somewhat angry phone call I got from the person who is in charge of making sure Gavin gets his supplies. I've been assured that they will arrive today sometime but beyond that, there are no specifics. I'm sure they will arrive and aside from throwing off his schedule, there's no harm in waiting until later today to do his infusion. I'm not angry or really upset because we didn't check this particular delivery. I wasn't here when it showed up and it sorta fell through the cracks. If I had checked it, I would have known…

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September 24, 2018

My thoughts

Hell no that didn’t stop me

I had a hard time sleeping last night. Lizze says I was snoring pretty bad, but that's actually uncommon for me but it does happen from time to time. I was stuffy and that always makes it challenging for me to fall asleep. Lizze is adjusting to her recent change in medications and so she's struggling with sleep a bit as well. She got the boys ready and I took them to school, before getting my 3 miles in for the day. The only part of me that wanted to walk was the part of me who wants to see me hit my goal of 80 miles this month. I'm almost there and I need every day I can to see this through to the end. Unfortunately, within the first…

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September 24, 2018

My thoughts

Sometimes surviving is a monumental victory

We survived another challenging day. I ended up having to run some errands this afternoon and so we didn't make it to the park. I don't think anyone really wanted to go, so no one was hugely disappointed. Elliott struggled this afternoon. It's hard to explain what exactly he goes through but they seem like sorta extreme reactions to ordinary things. I know he has Autism. I know he has ADHD and anxiety. I also know that he's almost a teenager as well. What we're seeing is more than that and it's one of the reasons we're seeking help from Akron Children's Hospital. Between the actual testing and twelve years of observation, Dr. Pattie is concerned that we may be looking at bipolar disorder. There are no clear-cut edges here…

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September 24, 2018

Autism Parenting Insight / My thoughts

Trying to reduce the stress in our house is not easy

Today is a totally blah kinda day. We are in a weird place at the moment and that's creating some unneeded stress for everyone. The boys (meaning Elliott and Emmett) are very stressed out over the enormous tree in our yard and are worried that more of the tree is going to fall. This has them on edge, which influences their behavior and mood. I want to get them out of the house today and away from what's stressing them out. It's a really nice first full day of Fall and a trip to the park could be a great way to spend the afternoon. Unfortunately, Lizze is not doing so well today either and her migraine is limiting her movements right now. Anything that we go and do this…

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September 23, 2018

Autism Parenting Insight / Elliott / Emmett John / Gavin / My thoughts

The heartbreaking reality of parenting an adult child

Being a parent isn't easy. I don't think anyone would argue that statement. Being a special needs parents it's without a doubt, the most difficult endeavor of my entire life. We are facing a very difficult reality right now with our oldest, Gavin. Gavin's going to be 19 in a few months and we're still adjusting to him being an adult. My goodness, does that make me feel old. I've been raising Gavin as my own since he was about 15 months old. I legally adopted him many years ago and that was a moment I will never forget. I'll always look back on the day we went to court to make things final, as a blessing and a truly amazing experience. My personal journey with Gavin has brought me…

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September 23, 2018

Autism Parenting Insight / My thoughts

This has been hard on my kids with #Autism

One of the things we try to do as Autism parents is control as much going on around us as possible. We don't do this because we're inherently control freaks, we do it because we try to limit the things that can cause our kids distress. Sometimes we have some control but more often than not, all we can do is deal with the fallout. We're living in one of those times right now. Last night we had a really bad storm knock down part of a tree, causing damage to our house and a massive amount of damage to our yard. We're very fortunate that it isn't worse than it is but the kids are struggling right now, Emmett especially. They are freaked out by what happened, the damage,…

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September 22, 2018

My thoughts

So yeah, it’s worse than I thought

When I woke up this morning, I had actually forgotten about the enormous section of tree up against our house. When I did remember, the first thought was how lucky we were that it wasn't any worse than it was. That's still true but thinking that somehow made it seem like is really wasn't that bad. You can read in more detail about what happened by clicking here. I was very quickly jolted back to reality when I stepped outside to survey the damage this morning. It's absolutely true that we are insanely lucky that things aren't any worse then they are. In fact, I can't begin to explain how it isn't worse. We're talking inches of clearance in some areas and if it had landed only inches to the…

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September 22, 2018

Blessings / Gallery / My thoughts

It’s pretty bad but thank God no one was hurt

My thoughts are scattered. As a result of tonight's events, my stress level and worry are at all time highs. It's probably best if I just start at the beginning because I'm sorta processing all this in real time. My feeling are still raw and I'm unsure of what's going to happen. Pictures are on the last page. I learned that both Elliott and Emmett were having a rough day after I picked them up from school. Elliott had his mechanical pencil stolen and Emmett had his water bottle stolen. Neither of these things are huge deals to me but to the boys, it's was a huge deal and a betrayal of sorts. Things have been tight financially and so we haven't been able to really do anything that wasn't…

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September 21, 2018