Nose bleeds and tummy aches

It's gonna be a long trick or treat weekend. Both boys are home from school but for different reasons. Elliott went to bed not feeling well and woke up not feeling any better. His stomach is upset.be his nose is really dry and that's what behind this. Once we get this under control, I probably get him a saline nose spray. Emmett on the other hand is feeling okay but is getting nose bleeds and they take awhile to get them to stop. This actually first happened a couple of days ago and it started again this morning. Emmett woke me up about 6 AM, so I could help him. He's not doing anything to cause them. They just sorta happen. I'm thinking maybe his nose is really dry and…

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I was completely overwhelmed tonight and didn’t handle it well

Good days and bad days are relative, especially when you're an Autism parent. A good day might be only having to live through a few meltdowns and a bad day might be absolutely catastrophic. There are of course, plenty of days that fall somewhere in-between. Today for me was mixed bag. Lizze was down for most of the day, which sucks for a million reasons, not the least of which is the fact that she's truly miserable. Sometimes the struggle is physical and sometimes it's emotional in nature. Other times it's a combination of both. Today was a combination of both and life just wasn't fair to her. Anyway, after school today, I picked the boys up and took them to my parents house to carve pumpkins. It's become a…

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Why it’s been an emotionally heavy day

Last night we went to family night at the kids school. It was okay. The kids had fun and that's all that really matters. These things are always crowed, loud and in the middle of the goddamn school week. I get why they do that but it also means that the kids get all worked up, struggle to go to sleep and have a hard time going to school the next day. Anyway, this was a science night and they did all kinds of cool little experiments. The boys loved it. Some of the experiments totally blew Gavin's mind. It was like magic to him, which is sorta sad for me but at the same time, I'm happy that he enjoyed himself. Lizze came with us and that was not…

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They don’t understand how he’s the oldest and yet acts like he isn’t

The boys and I had a movie night after therapy and a quick trip to the park. We decided on The Incredibles II because we loved the movie in the theater and frankly, it's the only thing everyone could agree on. It was even better the second time around but this time, the boys were getting frustrated because Gavin kept talking during the movie. It's not that he was just talking, he was talking smack to the bad guys in the movie. It was kinda weird. He doesn't mean to be annoying or frustrating but he can definitely be both sometimes. Trying to get the boys to understand what's going on with Gavin has proven difficult. They understand the basic concept that Gavin has many challenges but they don't get…

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I’m so tired

The boys and I went to therapy tonight. Lizze was not feeling well and has been sleeping. I brought Dr. Pattie up to speed on the boys and we spent some time helping them work through some of the issues they we're having while we were there. It's absolutely exhausting because I'm trying to manage everything and it never stops or even slows down. Lizze struggling with her health and that puts a disproportionate amount of responsibility on my shoulders, which is okay but it takes its toll. I don't mean to sound like I'm complaining, even though I'm sure it sounds otherwise. The reality is that things are pretty rough. I'm trying to work, help everyone with everything they need, manage the house and the rest of our life.…

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He’s still hearing voices he doesn’t recognize

Despite everything that's currently causing me distress, I feel like I'm actually doing pretty good. All things considered, I'm in a decent mood and that's half the battle sometimes. ☺ Gavin is in a good mood this morning as well. Unfortunately, he's also continuing to struggle at the same time. He's very clearly hearing voices that he doesn't recognize because it seems like every 5 minutes, he's popping his head out of his bedroom and asking if we had just called him. I say it's a voice or voices he doesn't recognize because Gavin always hears voices. Aside from being Autistic, he's also Schizophrenic. He lives in this elaborate world where he's a super hero in charge of a group of superheros. They're always going on missions to save the…

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More information on the storm damage to our house arrived and it looks like we’re up a creek without a paddle

Things are looking worse and worse in regards to our homeowners claim for the storm damage from a few weeks back. I got the estimate for the cut-up and removal of the tree this afternoon. Putting everything into perspective here for a second, we have a minimum of $1,700 worth of repairs to fix the physical damage to the house and we're looking about $1,500 to remove the tree. That's a minimum of $3,200 total and likely a bit more because they haven't been able to ladder the house in order to fully inspect the giant hole in the outside wall, exposing the attic. Anyway, right now, the total insurance payout is about $1,032. The math isn't looking good for us. Once we get the tree removed, insurance will come…

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