Gavin begins Cardiology journey at the @clevelandclinic this week

The Cleveland Clinic called on Friday, before Lizze and I left for the funeral. They were calling to make Gavin's Cardiology appointment. The last time Gavin was at his Neurologist, we discussed Gavin having Ehlers-Danlos. His doctor wants him to be seen in Cardiology at the Cleveland Clinic because of the risk that he may have the vascular form of Ed. Ehulers-Danlos can complicate many aspects of his health. We decided to pull everything up to Cleveland from Akron because Gavin is aging out and will eventually have to move anyway. On Wednesday, Gavin will have an EKG or Electrocardiogram, to sorta measure how his heart is doing. We'll immediately see the doctor afterwards. I'm not expecting anything new to be discovered here because he's seen Cardiology several times at…

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We’re finally going to address a major problem tomorrow

About noon tomorrow, we're going to be picking up a chainsaw and getting the tree in our yard cut up. This has been a frustrating process because we don't have enough of a payout to take care of everything that needs to be done and we've had so many distractions. My Dad and I are going to get this part done, so State Farm can come back out and evaluate the damage to the house without the tree being in the way.. At the end of the day, the bottom line is that we will fall well short of the funds needed to get everything done. As a result, we're going to focus on the absolute most crucial repairs and that will be the damage to the side of the…

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I’m physically and emotionally drained

Today was a really difficult day for many reasons. Some of those reasons are obvious and some I won't be talking about right now. Perhaps someday, I'll have the courage to open up more than I have previously. As for the many things I will talk about, it was rough. The funeral went about as well an any funeral could go. It was sad but handled beautifully. It was heartbreaking but there was celebration at the same time. I picked the boys up from school after the cemetery, while Lizze rode back to the church with her cousin. The boys ended up having a fun with their cousins and we spent a bit more time with family before heading our separate ways. This whole week has taken its toll on…

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Why we aren’t involving one of our kids in the funeral today

We're going to be leaving is a little bit to drop Gavin off at my parents house. We've made the choice to not bring him, even to the luncheon and we've done that for a couple of reasons. The biggest reason is that he's Schizophrenic and Autistic. Emotionally charged environments are very destabilizing for him. It doesn't matter if the emotion is joy or sadness. It's not something he can process. He won't get sad or depressed by these event but he will likely experience more hallucinations and that's not good. WebMD For people with schizophrenia, stress can trigger symptoms. Gavin's already struggling with new voices and his medication situation is delicate. Basically, we don't want to take any chances that this will push him over the edge. The second…

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The screaming started before 7 am today

We're not off to a good start this morning. Emmett's not in a good place and he's freaking out because he doesn't wear dress pants. He wears comfy pants because of numerous sensory issues and is afraid that he won't match everyone else at the luncheon, after the funeral this afternoon. He's screaming and it's barely 7 am. To make matters worse, his glasses broke last night and I can't glue them back together. They actually broke about 2 weeks ago and I superglued them back together. They've broke a few times since and I've reglued them. Unfortunately, they simply won't stick anymore when glued. I should also mention that I believe this I'd the first time Emmett's ever broken his glasses and he's been wearing glasses for many years.…

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This week has absolutely taken its toll

First things first. Calling hours were really nice, at least as far as calling hours go. Lizze's family did a beautiful job and while it was sad, it was a positive experience, filled with a lifetime of memories. If I told you Lizze was okay, that wouldn't be true, but in time she will be. The boys are really struggling. They're dealing with all of this in a different way. They aren't crying or expressing emotion in that regard. What they are doing is absorbing all the emotion around them and become so overwhelmed, they don't know what to do. They're having a hard time sleeping and they're very easily frustrated. We're seeing an increase in meltdowns and fighting. As much as we try to shield them from our emotions,…

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I’m so overwhelmed and this is just an emotional purge

Today is a total fucking mess. Lizze found something to wear but I needed to go find something at the store. I spent three hours trying to find a goddamn pair of pants and a shirt. I've lost 40 pounds but it's still frustrating trying to find pants or clothes in general. I finally found the big and tall section but it was super tiny and not very helpful. I found a sweater and a pair of pants but I was so frazzled at end that I'm about to lose my fucking mind. As I was getting dressed and ready to leave for calling hours, I noticed the pants are frayed in the knee. I need to take them back and swap them out for another pair that doesn't have…

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