Things don’t always go as planned but we make do as best we can

One of the big things I've learned over the years is that things are not always going to go as planned, especially with four Autistic people living under one roof. We often find ourselves living minute to minute because there's simply so many variables in play that there's literally no way to plan for anything. As a family, we've all had to learn to adapt and change when needed because sometimes that's necessary for survival. It's really important that we don't allow sudden change to throw us too far off course. Some of us deal with change and unpredictability better than others but we all help each other when needed and we continue to move forward as a family. For those who are unaware, people with Autism tend to not…

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The side effects of the holidays can be rough for #Autism families

It's been a long week and a really rough day so far. Kids with Autism can struggle with all the excitement, overstimulation, anxiety and emotions involved with the holidays. Mine are no exception. We've had fighting, meltdowns and other emotional outbursts all day today. I've decided that we need an intervention because the tension is only hurting everyone and frankly, I can't take it anymore. I think we're going to take advantage of the beautiful weather and visit Quail Hollow. Maybe we'll do a short hike and take some pictures. The boys need a physical outlet for their emotional overload and a constructive way to decompress. I'm hoping that we will be able to find some relief for the kids, for their sakes and ours.

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Today’s #Autism parenting journey in pictures

Today was a mixed bag of really awesome, really frustrating and a bit of whatever fell in between. Overall, we made some amazing memories today. We ended up having to go through some shit to make them but that's all part of the journey, right? Of course it is... I thought I would do things a little different today. Rather than write a 1,000 words, I will share a few pictures from key moments that took place today and briefly explain why they were pivotal moments. ☺ This took place immediately after our guy time this afternoon. We said goodbye to my Dad and brother before heading to Giant Eagle for some desperately nedded groceries. I normally don't take all three boys with me to grocery store because it ends…

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We’re having a guys day out today

We're doing something a little different today. We're having a guys day out today. The boys and I have guys nights on occasion but this is a bit different. Rather than simply being myself and the boys, it will be my Dad, brother and nephew as well. Were going to see Aquaman and grab some lunch together. I'm super excited.. ☺

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Such is life when parenting a child with fragile health

Most people will never know, let alone fully understand what it's like to have a child with fragile health. Please understand that if you are among the many who don't get it, count your blessing every single day because I wouldn't wish this on anyone. Living in constant fear for your child's life is truly awful. The stress is endless and the heartache is abundant. The guilt for not being able to take away your child's pain or fear is unbearable on a good day and I'll just say that the bad days are really bad. 😔 My oldest son has several life threatening health conditions and they require frequent doctors visits, hospital stays both planned and emergent, as well as special procedures every few days. Thankfully, he's not be…

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We have a very exciting morning ahead of us

Any minute now, a delivery truck will be dropping off our brand spank'n new gas range. My parents decided to surprise us for Christmas with a new range. We were originally going to convert from gas to electric but our panel would need upgraded to the tune of about $2,000 and that's simply not worth it. We actually prefer gas but our old gas range made everything sticky. Although truthfully, everyone says there must have been something wrong with our gas range because that's never happened to them. Anyway, I pulled the old one out a couple days ago and made room for the new one. We're so grateful for this. It's been way too long since we've had a fully working stove. We've found ways to work around it…

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It’s been a rough couple of days and here’s why

I have been sorta off the grid for a couple days and there's a few reasons for that. Mostly it's because I'm depressed, tired and just haven't had the energy to put my thoughts together. Another is that I've been hit with a couple hate mobs and even a death threat on Twitter. Most Autistic adults are amazing people and I'm blessed to have many as friends. My wife is Autistic and so are all my kids. There's a very small, but incredibly vocal subset of Autistic adults who are very aggressive, rude, hateful, intolerant and simply mean people. They say some truly vile things and seem to think it's okay to threaten people who don't agree with them. I was lucky enough to the target of these hate mobs,…

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I’m feeling incredibly lucky tonight

We had a pretty great Christmas this year. The boys had an awesome day and we're really proud of them. Lizze and I got to bed relatively early last night and got up about 7 AM, so the kids could open their presents. Our rule is, they can raid their stockings after 6 AM but no presents until 7AM. Considering the level of impulsivity our boys deal with, they manage to do remarkably well with this rule. ☺ The overall theme this year was Nerf Laser Tag. We thought they would enjoy the change of pace and we were right. They love the new Nerf Laser Tag guns. They also got a bunch of other things but the Nerf stuff is what will likely be their focus. I'm really proud…

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