Why is Gavin struggling with his #IVIG infusions lately?

It was a rough morning in the sense that everyone was dragging. Emmett had a rough time falling asleep last night because he's got a stuffy nose and while that's unpleasant for anyone, it's especially troubling for someone with sensory processing disorder. Lizze got lunches made and I got the boys to school before hitting the track. Gavin put his infusion together and eventually got it going. He's struggling with these lately. When it comes to sticking the needles in his belly, he's become very, very hesitant. It's completely understandable and I don't blame him. The issue is that it's taking so long that he's risking contaminating the needles prior to sticking himself with them. I had to stick him last time but he did mange to get this done…

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While we had some #meltdowns, I feel like we did pretty well this weekend

We had a pretty good weekend. I mean, we had our moments but all things considered, it was pretty good. The most exciting thing to go on this weekend was trapping squirrels in our attic. There were a few meltdowns and I some less than stellar parenting moments but we survived. Lizze is unfortunately, dealing with the return of her migraine. It's not as bad as it was previously but it's worse than it was after her headache infusions. We're waiting to see if her prescription for the Cefaly device is covered by insurance. We have the preventative one but Lizze needs the one that acutely treats the migraine she currently has. All the paperwork has been submitted. In fact it was all submitted while I was waiting for Lizze…

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If it’s not one thing it’s another

If you recall last summer, we had an issue with racoons in out attic. When we took the storm damage to our house, a few months ago, that sorta solved the issue with the racoons because the only way they could enter the attic was removed. Insurance covered most of the repairs and while there was still a mess inside the attic to contend with, the racoons were gone. Unfortunately, that wasn't the end of it. We now have squirrels in our attic. Apparently, the window in the back room of the attic has blown out. The entire window needs replaced and I mean removed from the wall and a whole new window installed. That's how the squirrels are getting in. We never go into the attic and we never…

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Why are #Autism parents Judged so Harshly? (S1E5)

If you're an Autism or Special Needs parent, you are probably all too aware of what it feels like to be judged by those around you. My wife and I are no exceptions. I know how bad it feels to be judged and I see how badly others are impacted by this as well. Because this impacts so many people, I wanted to devote an episode to talk about judgment. It's so important to help people understand how their words and actions can impact others. Give this a listen and then pass it along to someone who could use the insight or would benefit from being reminded that they aren't alone.. ☺

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Why it’s so hard to cook for my #Autism family

Good morning folks. ☺ Last night before bed, I decided to do something this morning that I haven't done in a long time time. I know this is going to sound weird but I haven't cooked a family breakfast in I can't tell you how long. Sounds terrible doesn't it? Honestly, yes and no. The reality is that I love cooking. I love cooking for my family. That's not the issue here. The problem has been that my family is very, very, very difficult to cook for because of all the sensory related food issues. I used to try and cook three meals a day but it became too much. It wasn't just cooking three meals, it often meant cooking a unique meal for each person in the house, three…

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Just a super quick note

So, I'm sorry that I've been absent from here recently or at least not writing as much as I normally do. I'm spread so thin right now and I'm having to puts some things down. I wanted to quickly post an update because Gavin is heading back to Akron Children's Hospital this morning. This is a follow-up with his gastro. He's having some problems and I need to try and find him some help. Lizze and I will have to divide and conquer today because she's has to not only be somewhere else during Gavin's appointment but she's also making sure the kids get picked up from school. I'm not feeling super enthusiastic about today but we need to get through it. I wish you all the best today and…

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Where’s the volume control?

I love my family. I know things are challenging and I can find myself overwhelmed and frustrated but I truly adore my family. Aside from improving our quality of life and safety, I wouldn't change my life for anything in the world. I don't know why I always feel compelled to say that prior to discussing something that I find frustrating but I do. Anyway, having said that, it was rough day. Lizze is in a great deal of pain and her head was pretty much left her incapacitated. On Tuesday, I gave her the second injection of Aimovig, her new migraine preventative. While it hasn't helped yet and we don't expect it to for a three or four months, for a few days after the injection, her migraine gets…

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This was expected

I went to bed last night, knowing that this would be a possibility and after not sleeping well at all, I was quite grateful when the early morning call came to confirm it was a snowday. We got a snow/ice storm late last night and early this morning. It was apparently bad enough to cause the schools to shut down. I was able to go back to sleep for a little while and wake up feeling a little more rested. We have Dr. Pattie tonight and I have a conference call in a bit in regards to someone wanting to be interviewed on the podcast. While we're on that subject, I'm actually getting requests from people and/or organizations that want to come on and talk about what they're doing for…

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