Life goes on

Gavin seems to be going through another psychotic break. He is leaving reality behind and entering his imaginary world. He also seems manic at the same time. He has become very disorganized and very easily agitated. He has become a little "smart ass" for lack of better words. He is rude and disrespectful. It's even more frustrating because he has no idea what we have been through for him over the past 10 years. We have sacrificed everything for him. We did it cause we love him. For more info on that check out my wife's blog. http://cheerioconfessions.blogspot.com Elliott Richard is all over the place and exhausting. Emmett John is his little partner in crime. Lizze's fibro medications aren't working anymore so they were just doubled. That means she will…

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Overwhelmed

I have reached the point where I think I'm actually going to crack. Lizze and I both are on the far side of our limits. Lizze is in a fibro flare so bad she can't literally can’t move without tears streaming down her face. My back went out again a few days ago. Gavin is in the middle of a manic phase. He is up all night running in circles and playing with toys. He’s losing his grip on reality. He’s back in his imaginary world. In this world he’s the ruler of 9 other worlds. He is consistently destroying the evil enemies. He says he can “smell their dark evil”. When he is in this place he can’t remember anything (he remembers even less the usual). He has no…

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It’s been awhile

Nothing really new to report this weekend. Gavin was doing ok but today we have had some problems. We got Elliott a Nintendo DSi the other day. We decided to let Gavin and Elliott play together a little today since Gavin has been doing well. We have a baby monitor in the room to hear everything and we are like 10 feet away in the next room. Apparently Gavin started having Elliott take pictures of him with his DSi. He had been whispering ( which he knows he is not allowed to do )to Elliott. We jumped in right away only to hear Gavin say he wanted Elliott take pictures of him in his under ware. Super creepy, right? We then took the DSi and went through the pictures and…

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Ready to give up

Lizze just got back from taking Emmett to Dr. H to make sure Emmett John didn't have an ear infection. He has been pulling on his ears and digging into them and we wanted to make sure everything is ok. His ears are clean and the tubes are clear. So it looks like Emmett John is trying to figure out why everything is silent. We think his hearing loss has been gradual. He is probably loosing the rest of it now. We know that he can no longer hear us. It's so hard to know this and be able to do nothing to stop it. For more information, you can also check the Complete Guide To Hearing Loss and Hearing Aids from medicalprices.co.uk. I don't want to hear how it…

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Nothing New

Today was relatively uneventful. Gavin goes to see the pediatric neurologist in the morning. We will have to devide and conquer, again. Lost and Tired Sent on the Sprint® Now Network from my BlackBerry®

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Weekend wrap up

Going to bed early. Lizze is staying up for a bit but I have had it. Gavin has no school Monday so that's going to be exciting. Tax return is Friday and we can order a new mattress. Can't decide between Temperpedic and the mattress factory. Hopefully this week goes quickly..... Lost and Tired Sent on the Sprint® Now Network from my BlackBerry®

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A Break

Emmett John was up screaming all night again. In a desperate attempt to survive I sent out a has text to my family for help. Most everyone was working today and my dad had a funeral. I did get a call for Jon. Brian, Jon and Teri came and picked up Elliott Richard for a few hours. Everyone got a break today for a while. Thanks guys.... Lost and Tired Sent on the Sprint® Now Network from my BlackBerry®

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What are we supposed to do?

Emmett John is really starting to struggle with his challenges. The past few night he wakes up hysterical. It takes hours to get him to settle down. Still learning sign language. Slowly. Lost and Tired Sent on the Sprint® Now Network from my BlackBerry®

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