Waiting for relief

Well I finished my steroid cycle for my back and sadly it didn't work. My doctor will only let me do this once a year because the steroid that reduces the inflammation also destroys the rest of my cartilage in the process. So I am left with my muscle relaxers. Hopefully they can relax the muscle enough to relieve some of the pain caused by compensating for my left side.Lost and Tired

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New time and new channel

I have moved to wordpress because of blogger issues. Please follow me at the new address http://lostandtired.wordpress.com Thanks Sent on the Sprint® Now Network from my BlackBerry®

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Just a another update

It has been a few days since I have been on here. Lizze is still recovering surgery. She is actually having a pretty rough time right now. She is in a tremendous amount of pain. The fact she has fybro. complicates things alot. You can think of it like this, her body interprets EVERYTHING as pain on a normal day. So the pain from surgery is exponentioally greater. She is having in there as usual. She is a strongest person I have ever met.Gavin is Gavin. I met with the teachers and principle again the other day to discuss our concerns. I actually walked away feeling better about the situation instead of wanting to beat my head into the wall. The teachers are catching on and responding well to the…

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What life is like: part 2

One of the most haunting problems I feel as a parent is when people have spent "time" with Gavin and say he was a perfect angel. You're probably saying to yourself how could that be bad? The truth is I hate to hear that from people. The reason being that it makes me feel like a failure. Gavin does so well for "them" it must be "me". It is so demoralizing. The reality is that most people see Gavin as this sweet innocent child. They see him this way because no one ever spends enough time with him to see everything. That's not meant to be a slam on anyone either, just a fact. The problem lies in the fact that when he is "visiting" someone they tend to entertain…

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This is my reality…….

You want to see who Gavin really is? Here you go. This is not pretty but I think it gets the point across. Sweet, innocent Gavin died many years ago. This is what we are left with. So please don't tell me how perfect he was or how well behaved he is. He DOES NOT just need understanding or anything else. This is the ugly, dark reality of what our lives are like. We are prisoners in our own home.This whole thing started because he wanted his pencil sharper. His pencil was just fine. He was trying to manipulate us and we weren't allowing it. I told him it was fine and to go do his homework. He started freaking out on the steps. I told him "we're not having…

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Almost back to normal

Well Lizze has been home resting. The kids came home tonight. Elliott Richard is sleeping on one couch and Lizze is on the other. Emmett John is up stairs with me. Gavin seemed to do ok at my parents. He had a bad day at school Friday. He was in the principles office at least twice. That is not good. We are still having issues with the school at this point and I am not sure what we are going to do. I want to thank everyone that helped with the kids (not that any of you actually read this) the past few days. Also thanks for all the prayers for Lizze. Tomorrow will be fun. Lost and Tired Sent on the Sprint® Now Network from my BlackBerry®

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Screw wordpress

Wordpress shut my blog down because they say it violates there terms of service. That blog was an exact port of this one. I don't see the problem....Bye Bye wordpressLost and Tired

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Truth or dare?

So I have been toying around with the idea of opening up a little more. Being just a bit more honest about everything.  Let you all in on what it’s like to raise a child with autism or other spectrum disorder. It’s not like you see on TV most of the time. In our case it’s extremely dark and challenging.  I think I will do this in parts because honestly this will be very difficult and emotionally draining for me. Here is my disclaimer: Gavin is no simply autistic.  He suffers from aspergers syndrome. Typically this means high functioning autism. In Gavin’s case this is not always true. Gavin is very unique in that he floats on the spectrum. This means that he can be high functioning (brushes his own…

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