We just got out. Lizze has a cyst at the base of her brain but apparently its not something to worry about. She does have tremors. He said they were called "Familial Tremors". It also looks like she does have narcolepsy. She is scheduled for a sleep study soon. Both of these conditions are genetic and so they are passed down the family line even if not everybody has it. It would extremely helpful if her biological mother wasn't so unstable because we have NEVER gotten anything but lies from her. Medical information for Lizze and the kids is so vital and also a "luxury" we don't get to have. Lizze's doctor's have all said medical information would save them time and give them a direction to go in.. As…

We are in the waiting room waiting to get the results of Lizze's MRI from a few weeks back. We will hopefully find out about the migraines, the tremors and the neuropathy. This has been a really long wait. LT

Frustration, it goes along with autism. I'm quiet often frustrated with Gavin. We were getting ready to walk out the door to go to school this morning and I noticed something wrong with his pants. The whole back side of his pants was covered in tooth paste. How do you get tooth paste on the back of your pants. It turns out that he had gotten tooth paste on his hands and so he wiped it on his pants and even the back of his school shirt instead of using the towel that was right next to him. Little things like this are expected but exhausting. The other day Gavin was getting ready to take a shower. We have been having big issues with showering because he doesn't rinse his…

Gavin had a great day at school. After school him and I went shopping. He did pretty good at the store as well. He even did the self check out while I bagged the groceries. I have video I'll post later of him checking the groceries out. Today was his last Wednesday of the school year. We have 3 months of summer break. I fear it will be a really long summer. Especially with our car situation. With EJ's new car seat and ER's existing car seat there is no longer enough room in the car. We desperately need to find a minivan. They all need their space. Car rides anywhere aren't much fun because EJ kicks ER and then they take turns screaming. Lizze gets her MRI results back…

Elliott Richard sat down on the steps and just unloaded. He is apparently very deeply effected by what is going on with his family. He has formed these opinions entirely on his own. I didn't really address anything because I wanted to hear what he had to say. It's amazing how articulate he is at only 4 yrs old. [youtube=http://www.youtube.com/watch?v=4Ze5IU7szJE] Elliott Richard is basically saying he is mad at God because of all the challenges his brothers and him mommy have been given. He talks about wanting to build a robot God and teach it the words to tell the original God to clap his hands and let Emmett John talk and Gavin understand. He is very sweet. LT

Today has been. Yeah it's just been. Lizze went to Gavin's therapist tonight and took ER. We have been having him evaluated as we go along to make sure he is doing ok with everything else going on around him. Well today he was evaluated again and she thinks ER may also be autistic. I swear to God if I had any hair left I would pull it all out. She believes that he is very high functioning aspergers. She doesn't think it will interfere much with life though. He also looks to have ADHD which we assumed would be the case since Lizze has that. It is important to know the difference so if need be it can be treated. On to Gavin. She wants Gavin tested for Fragile…

I want to share and perhaps discuss how life will change after a diagnosis of Autism. When you first hear the word "Autism" it's like someone sucked all the air out of the room because I couldn't breathe. It's in many ways the best and worst day of your life so far. You finally know why your child is "different" but then you finally "KNOW" why your child is different. Best and worst day all in one. You will most likely remember the exact moment you found out. I remember the exact moment for both of my kids. You will be on a first name basis with words like spectrum, comorbidity, occupational therapy, speech therapy etc. Plan on becoming an expert in your child's particular diagnosis because you most likely…

Today we finished all of EJ's paperwork. He is now qualified as MRDD. I wasn't expecting that today. That really kinda kicks you right in the gut to hear that. On the positive side that does give us FSS funding to make the house safer and provide for the sensory needs. Each step we take that gets us closer to the final diagnosis just makes everything all that more real. It's one thing to know something but it's another thing to "KNOW" something. If that makes any sense. I don't think there is any way to actually prepare for the moment of truth that is around the corner. I wouldn't wish this on anyone. If you are a parent of typical kids don't ever take that for granted it can…