No More Secrets.

I am so tired of the secrets and drama. Our lives are tough enough without you making things worse. Perhaps the best way to end this, is to simply air this. I will no longer keep your secrets. This is my response to Lizze's biological mother. Who injected herself into our lives of her own free will, only to cause us a tremendous amount of heartache and stress. She chose this path. Her email is in response to my post yesterday about Lizze's health. Her email is unedited I only removed the header to conceal her address.  ------------- Rob, For your information I gave Lizze all the medical information I had the first time she contacted me. My father was one of twelve. To the best of my knowledge, and…

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Thank you

Thanks everyone for the thoughts and prayers. I'm very grateful for all of you. We keep all of you in ours as well. Goodnight LT

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Autism and PICA

Gavin had a good day at school today. But he is once again complaining about tummy aches. The teachers don't pay much attention anymore because he has cried wolf so many times (so they don't feed into it per our request). If he's actually sick that's another story. Got Gavin into the car and started talking about the tummy aches. Did something upset you at school today? To which he answered "no". Then comes the question I hate to ask. "Gavin, have you been eating things that aren't food"? He said "no". I asked a few more times in different ways because that's what it takes sometimes to find out what he has eaten. ---Disclaimer-- The following items are things he has actually eaten.. - Not for those with a…

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Lizze Update

We just got out. Lizze has a cyst at the base of her brain but apparently its not something to worry about. She does have tremors. He said they were called "Familial Tremors". It also looks like she does have narcolepsy. She is scheduled for a sleep study soon. Both of these conditions are genetic and so they are passed down the family line even if not everybody has it. It would extremely helpful if her biological mother wasn't so unstable because we have NEVER gotten anything but lies from her. Medical information for Lizze and the kids is so vital and also a "luxury" we don't get to have. Lizze's doctor's have all said medical information would save them time and give them a direction to go in.. As…

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Pins and Needles

We are in the waiting room waiting to get the results of Lizze's MRI from a few weeks back. We will hopefully find out about the migraines, the tremors and the neuropathy. This has been a really long wait. LT

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Frustration

Frustration, it goes along with autism. I'm quiet often frustrated with Gavin. We were getting ready to walk out the door to go to school this morning and I noticed something wrong with his pants. The whole back side of his pants was covered in tooth paste. How do you get tooth paste on the back of your pants. It turns out that he had gotten tooth paste on his hands and so he wiped it on his pants and even the back of his school shirt instead of using the towel that was right next to him. Little things like this are expected but exhausting. The other day Gavin was getting ready to take a shower. We have been having big issues with showering because he doesn't rinse his…

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Gavin’s day

Gavin had a great day at school. After school him and I went shopping. He did pretty good at the store as well. He even did the self check out while I bagged the groceries. I have video I'll post later of him checking the groceries out. Today was his last Wednesday of the school year. We have 3 months of summer break. I fear it will be a really long summer. Especially with our car situation. With EJ's new car seat and ER's existing car seat there is no longer enough room in the car. We desperately need to find a minivan. They all need their space. Car rides anywhere aren't much fun because EJ kicks ER and then they take turns screaming. Lizze gets her MRI results back…

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Elliott Richard Opens Up About God and Autism

Elliott Richard sat down on the steps and just unloaded. He is apparently very deeply effected by what is going on with his family. He has formed these opinions entirely on his own. I didn't really address anything because I wanted to hear what he had to say. It's amazing how articulate he is at only 4 yrs old. [youtube=http://www.youtube.com/watch?v=4Ze5IU7szJE] Elliott Richard is basically saying he is mad at God because of all the challenges his brothers and him mommy have been given. He talks about wanting to build a robot God and teach it the words to tell the original God to clap his hands and let Emmett John talk and Gavin understand. He is very sweet. LT

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