Another Long Night

Had a rough nights sleep last night. My back is bothering me to the point that sometimes I actually consider the surgery. However, I can still cope with it for now. EJ and ER both slept through the night for the first time is a while. EJ woke up at 4:30am and wouldn't go back to bed. The kids might be hanging with my parents today and G is going to spend the night. ER and I might have a very uncomfortable camp out on the living room floor again tonight. Lizze has to double her depakote today so we aren't sure how that's going to go. She has a doctors appt today at 3pm and we have to go grocery shopping. Maybe catch a nap later if we're lucky.…

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Where to begin……

Where to begin? I have been slacking a bit on posting mostly cause I've been in lots of pain and my computer needed to be shown who's boss. Lizze had an absolutely brilliant day. She got EJ and G appointments at the children's hospital. EJ goes later this month and G goes next month. She got a lot accomplished on the medical front today. Great job honey. I know she worked through a tremendous amount of pain today and I'm grateful for all she did. ER had another nightmare last night that ended with him and I downstairs on the living room couches. Not real comfortable for me but he felt better so..... EJ has been fighting us on wearing shirts. He can't seem to tolerate the seams. He totally…

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Let Sleepless Begin….

Well ER just had a nightmare that we were all driving in the car and the wheels fell off and we crashed. He was pretty freaked out so now he's snuggling with us and going back to sleep. Thank you for sharing our lives. LT

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A bit of relief……..

Last night was pretty nice. I finally got to take something for my back. Some pain killers,muscle relaxers and motrin. I was out by 7:30pm. I haven't taken anything for my back for a really long time. I slept on the couch and at some point I ended up with ER draped across my legs. I kept trying to shake him off cause - though he was Maggie. I slept in and it was great. I woke up to Gavin having a meltdown over something I can't remember. But it was still nice to not hurt even just for a little while. Thanks honey. Thank you for sharing our lives. LT

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Somethings Up With Gavin

Something is going on with Gavin. He's really off today and that's saying something. Today was the first day of summer break. All I can say is 1 down 103 to go. I'll be honest I'm not looking forward to this summer. We are getting Gavin in to see the doc's again because he is really starting to worry us. My first thought would be over medication but he's not over medicated. He is however still regressing. He brushes his teeth and you'd think he'd been finger painting with the tooth paste not brushing his teeth. He can't find things. He'd look for his backpack (which is on the couch where he put it) and can't find it. He will even pick "IT" up and look underneath it. His problem…

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Autism and Sexuality

Gavin is really starting to struggle. He seems to have significantly regressed with no sign of slowing down. The frustrating part is that he could be playing us. He is extremely manipulative. Lizze went to the school to pick up Gavin today and chat with the principle. While they were talking Gavin very inappropriately put his arm around Lizze and grabbed her butt (not letting go) and the laid his face in her breasts. She handle it well. They had the private parts talk again. We have to get this under control if that's even possible. He does this type of hyper sexual thing pretty often and "no" it's not an innocent thing. There is intent behind it. We will have to increase our vigilance in this area. Thank you…

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It Rained……..Inside

So this morning it rained. I happen to look behind our tv and I noticed water dripping inside the window. The storm windows were closed cause the air was on. I looked again and the windows had actually filled with water. When I open the inside window the water poured out onto the floor. The water was dripping through the wall into the window. I have all the computer business hooked up over there but we caught it before they were damaged. That would have been devastating. I have built up a lot of stuff for the business over the years and I would not have been able to replace for a bit. My dad and brother came over and laddered the side of the house and fixed the clog…

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Perspective: From the heart of a special needs father……

Perspective: From the heart of a special needs father: You are lucky because you never use words like autism, spectrum, bipolar, sensory, anti-psychotic, manic or nonverbal in relation to your children and may not even know what they mean. I am all to familiar with them and wish I wasn't. You are lucky because your kids have friends, even if they could pick them better. Mine don't have any and that breaks my heart. You are lucky because your kids curse and are disrespectful. Mine have never said a word and I would give anything to hear him say Daddy. You are lucky your kids wear clothes even though you can't stand their tastes. Mine can't stand the feel of clothes on their skin. You are lucky you have to…

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