Join the Lost and Tired Network.

I started a community as an extension to this blog. I would like to invite everyone to check it out. I want it to be a safe place for all of us to go and share our stories. You can post what you need to post. I ask that you keep it clean and respect everyone. I want this network to be able to provide information and support to those in the community who may be struggling. Sharing your story, good or bad may give someone the hope and strength they need to get up and move forward. Anyways, I'm not sure how this will work out but you have nothing to lose. Here is the link Lost and Tired Network

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Knowing is Awareness

Since I started this blog I have wanted to really be able to help others going through what we are going through. There are so many families out there that are "Lost and Tired" just like us. There are also families out there that are just now beginning the journey into autism and have no idea what to do. It's overwhelming and honestly quite terrifying. I want to be able to reach out to these families and let them know they aren't alone. I remember what it was like when I first heard the words "Gavin is autistic". I felt my whole world come crashing down. That was five years ago. Now we are going through that again with EJ. Along the way we have learned a tremendous amount. We…

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Gavin’s Weekend

This weekend was pretty good. Haven't had a good one in a while. Saturday was my grandmothers 85th birthday and everyone went to surprise her. Lizze and I had to stay back because she had a med change and a doctors appointment. My parents took all the kids for most of the afternoon and Gavin overnight. Elliott Richard and I camped out in the living room watching king of the hill on netflix. We got up this morning and ran some errands. I did yard work and then we had a bonfire. Gavin got home around 5 or 6pm and had dinner and went to bed. He was exhausted. EJ and ER went to bed without a problem. Lizze and I watched "The Alphabet Killer" on netflix and called it…

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Raising Autism Awareness?

Where I live in Ohio there is little to no autism awareness. Nothing was done or even mentioned for autism awareness month. There really isn't anything dedicated to autism at all. How do I fix that. We do have a charter school. Gavin goes there and it's amazing. There are no fundraisers or billboards. Autism needs everyone's attention and everyone's support. Does anyone have any ideas? Aside from sharing our story with as many people as possible, I don't really know what to do. I know there are more families out there like us but there is no communication. Do I form a support group or maybe an advocacy group? We have neither here. I know I would like to set up some type a local network providing people with…

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Poll about “Autism Speaks”

I need to ask you guys a favor. I have a poll to the right under my Gravatar about "Autism Speaks". I just want to get an idea about how the autism community feels about the organization. I hear lots of things but don't know if it's just a vocal minority. Thanks ahead of time for your help. If you can't find the poll here try this direct link. Here is the short link: http://poll.fm/1yumv please feel free to pass it around. Post it to your blog if you want to. I really want to know how the community feels. The more the merrier. LT

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Wake up call……..

Marc, Not trying to single you out but your comment about the video inspired me to write the following. You have many great ideas and I want to thank you for having the courage to share them here. This started out as a reply to my friends comment but some took on a life of its own. Once again, great to hear from you. You make so many good points. I guess the video has been out a while now but it's new to me. What I don't get is the people on YouTube who oppose the video were saying things like "my child doesn't need cured" or "autism isn't a disease that needs cured". People were offended because autism was compared to cancer and aids. The comparison was in…

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Controversial Video from Autism Speak

This is a very controversial video from "Autism Speaks". I'M BY NO MEANS ADVOCATING THIS VIDEO. I'm not sure how I feel about it. [youtube=http://www.youtube.com/watch?v=HDdcDlQVYtM] I guess I have mixed feelings. On one hand I think it makes a good point making autism out to be a predator of our kids. Because the truth is it acts that way. Some people effected by autism are very high functioning and successful. I hope that this video was focusing on those without a voice of their own. I don't think that they made demons out of autistic kids if you really listen. I think the narrator is supposed to be autism talking about what he has done, is doing or will do to our kids. The fact is that even the strongest…

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