Gavin Update

I got both of my little men in bed and sleeping. Lizze is with Gavin at Dr. R's. Hopefully we will have some idea of what is going on with him. I'm waiting for them to get back. Will update as I get the information. LT Posted with WordPress for BlackBerry.

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Racing thoughts……

I came up stairs to go to bed and EJ is peacefully sleeping. In the next few hours he will most likely start screaming. I wish I knew what was wrong. I wish he could tell us. I wonder if he will ever speak. If he does, what will his first word be? Sometimes the pain is just to much to bear. I wish the rest of the world would understand what this is like. I be happy if just the part of the world I crossed paths with understood. I wish bill collectors would understand that things are really rough for my family at the moment and stop asking for money I don't have to give them. I wish there was a visible sign I could wear that would…

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Speechless

Our good friends Deb and Marc posted this to my facebook page. I don't what to say about it. I haven't stopped crying yet. I wanted to share this with everyone and thank Deb and Marc for their unconditional love and support. They are truly the definition of friend. This truly portrays what being an AU parent feels like. All I could think about was our little Emmett John. This puts into words what I feel every day. Please pass this video along and spread Autism Awareness..... Thank you.. [youtube=http://www.youtube.com/watch?v=Mm8XRp1VgT4]

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Gavin Update

Well we finally got an appt for Gavin to see the doctor. He goes tomorrow night. I really hope they can help us figure out what is going on with him. Today walked into a wall as I passed him in the hall way. I have no idea what to expect when we go. Maybe it's medication related but I doubt it. I'm paranoid sometimes that we don't feed him enough. But his doctors all say he is good. We have to restrict him because he can't regulate himself. It doesn't feel good to deny your child food even if it's in their best interest. Hopefully we will have more information tomorrow night to pass along. Until then we will just buckle down and make it through as we always…

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FYI

Hey guys just wanted to let you know that if you read some off topic posts it's because it an getting paid to review some site and things like that. I kind of feel like I'm doing a disservice to this blog and topic but we really need the income. I thought I would be honest and let you know what was going on. You may not even notice the posts cause I will try to blend them in pretty well. Thanks for the understanding and support. LT Posted with WordPress for BlackBerry.

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We need to find a van…

We used to drive a nice Saturn L200 but honestly it was to small.  We were without a car when we lost it. My aunt and uncle gave us a Kia Sportage and that got a through some tough times. When the electrical system went completely nuts (apparently a known and non-repairable condition) we had to finally put her to rest. We are very grateful and lucky to have such generous family.  Then my parents fixed up their Chevy Lumina and gave that to us. We are currently still driving that. However, with the behavioral issues some of our kids have (namely Gavin) we have safety issues to worry about. So we are in the market for a new or nicely used mini-van. We have found that the pilot seats work…

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Today has been……

Today has been challenging. I woke up this morning and realized that I used the wrong debit card yesterday while at the hospital. That is a $120 mistake. I'm also looking for a new bank now so if anyone has advise let me know. Gavin was at the doctors for the infection on his hand. He came home and slept for 5 hours. Very weird. It's so hot on the 2nd floor of our house. The first floor is air conditioned and nice. I need to figure something out because I don't want the kids to get sick. I got fans but there is no relief. I may have to put off the chipper (for the trees we just took down) for a week and look at another window air…

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and the day ends in oatmeal…

Gavin did not have a good day. He had oatmeal for lunch and then threw it away so he had oatmeal for dinner. He drags it out so that he runs out of time and then throws it away. We need to figure a second tier of the punishment when he doesn't eat it. Anyone have any ideas? Remember rewards don't work for him. Someone had made the suggestion to have a reward available at the end of each day if he earns it. If he doesn't earn it the his next chance is the following day. I also have a behavioral contract on my mind but don't know if he would even understand what he was signing. Ideas? Posted with WordPress for BlackBerry.

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