Gavin Update

Well we finally got an appt for Gavin to see the doctor. He goes tomorrow night. I really hope they can help us figure out what is going on with him. Today walked into a wall as I passed him in the hall way. I have no idea what to expect when we go. Maybe it's medication related but I doubt it. I'm paranoid sometimes that we don't feed him enough. But his doctors all say he is good. We have to restrict him because he can't regulate himself. It doesn't feel good to deny your child food even if it's in their best interest. Hopefully we will have more information tomorrow night to pass along. Until then we will just buckle down and make it through as we always…

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FYI

Hey guys just wanted to let you know that if you read some off topic posts it's because it an getting paid to review some site and things like that. I kind of feel like I'm doing a disservice to this blog and topic but we really need the income. I thought I would be honest and let you know what was going on. You may not even notice the posts cause I will try to blend them in pretty well. Thanks for the understanding and support. LT Posted with WordPress for BlackBerry.

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We need to find a van…

We used to drive a nice Saturn L200 but honestly it was to small.  We were without a car when we lost it. My aunt and uncle gave us a Kia Sportage and that got a through some tough times. When the electrical system went completely nuts (apparently a known and non-repairable condition) we had to finally put her to rest. We are very grateful and lucky to have such generous family.  Then my parents fixed up their Chevy Lumina and gave that to us. We are currently still driving that. However, with the behavioral issues some of our kids have (namely Gavin) we have safety issues to worry about. So we are in the market for a new or nicely used mini-van. We have found that the pilot seats work…

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Today has been……

Today has been challenging. I woke up this morning and realized that I used the wrong debit card yesterday while at the hospital. That is a $120 mistake. I'm also looking for a new bank now so if anyone has advise let me know. Gavin was at the doctors for the infection on his hand. He came home and slept for 5 hours. Very weird. It's so hot on the 2nd floor of our house. The first floor is air conditioned and nice. I need to figure something out because I don't want the kids to get sick. I got fans but there is no relief. I may have to put off the chipper (for the trees we just took down) for a week and look at another window air…

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and the day ends in oatmeal…

Gavin did not have a good day. He had oatmeal for lunch and then threw it away so he had oatmeal for dinner. He drags it out so that he runs out of time and then throws it away. We need to figure a second tier of the punishment when he doesn't eat it. Anyone have any ideas? Remember rewards don't work for him. Someone had made the suggestion to have a reward available at the end of each day if he earns it. If he doesn't earn it the his next chance is the following day. I also have a behavioral contract on my mind but don't know if he would even understand what he was signing. Ideas? Posted with WordPress for BlackBerry.

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Back in limbo

Well we don't know anymore then what we did before today. He has a speech disorder for sure. He does parallel play. But we are not really any closer to the diagnosis. We have picked up a geneticist, GI specialist, OT and Speech. That's what I remember anyways. She wants a full genetic work up to figure out what's going on. She doesn't know where he falls on the spectrum. She wants to make sure we don't label any wrong. So basically she said he clearly has a speech disorder and he parallel plays. However, he has good eye contact and engages socially which is good. That's all I can remember. Lizze will probably post a more detailed post on her blog. Thanks to all for the thoughts and prayers.…

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Waiting

We are here now and waiting. The waiting is the worst. I feel sick to my stomach... I hate to say this but we are past the point will we are going to receive good news. It's a matter of figuring out how bad things are. He is cute, am I right? Of course he is. He needs a hair cut but that's a battle we haven't picked yet. LT Posted with WordPress for BlackBerry.

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Please say a prayer

Please say a pray today for us. EJ goes to the Children's Hospital today to see the Neuro/Developmental Pediatrician. We are now officially on the road to his diagnosis. We'll know exactly how far behind he is developmentally. Hopefully we learn what we can do to help him through this. I'm sick to my stomach right now. This is going to be an emotionally exhausting day. Please say a prayer. LT Posted with WordPress for BlackBerry.

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