Fit for Autism 9/02/2010

I walked 6 miles yesterday. My personal best since my back injury. If you would like to join "Fit for Autism" send and email to rob@lostandtired.com i'll get an invite off to you right away. Everything is tracked via www.endomondo.com. My hope is that I get as many people to join as possible. The more we have the more attention we can get and the more Autism awareness we can spread. Anyone wanting to support the cause is welcomed to join. We owe our kids healthy parents and this is what I'm doing to make sure my kids have that.

0 Comments

Seven

Seven years ago I married my best friend. Those that know us are aware of all we have been through. Despite the odds not being in our favor we are still together and still going strong. Lizze, I love you so much and I'm grateful for everyday you have given me. I know our life is far from easy but I know that it will just make us stronger. I love you.

0 Comments

Emmett John: The heart attack inducing toddler

This actually illustrates quiet well some of the challenges facing the special needs parent. Autistic kids have sensory needs and will often do anything to fulfill those needs, even at their own risk. I was taking a random video of Emmett John just trying out the camera and this happened. He has very specific sensory needs and he gets some of them filled by jumping on the couch. He didn't get hurt in this video but he does quiet often trying to ground himself. I was taking a random video of Emmett John just trying out the camera and this happened. He has very specific sensory needs and he gets some of them filled by jumping on the couch. He didn't get hurt in this video but he does quiet often trying to ground…

0 Comments

Welcome to my life. Enter at your own risk

On Tuesday morning we took Gavin to see Dr. R. We found out that Gavin can no longer safely take his MUCH NEEDED anti-psychotics. We knew we needed to adjust the Lithium but he needed bloodwork first.  Wednesday morning Lizze took Gavin for his bloodwork and he did great. While she was gone I was revieving our business and personal checking only to find out there had been 2 unauthorized transactions the night before. This makes 3 times so far in August. After I freaked out I thought "at least we weren't overdrawn". Then I realized that I cut payroll eariler that week and those checks hadn't cleared. Now there isn't enough left in the account to clear the checks. They will probably clear over the weekend and that will…

0 Comments

Elliott Richard’s 1st day of school

ER had his first day of year round pre-school today. I was so worried about how this would go but he had a great day. He likes his teachers and classmates. He didn't like the "carrots and green stuff" that were served with lunch. I can't express how much relief I felt knowing it went well for him. He should do even better tomorrow as he knows what to expect. We really didn't see much in the way of breaks today and Gavin had appointments we needed to attend. We won't have a break tomorrow either as Gavin has bloodwork. At least ER had a good day.

1 Comment

Gavin Crisis Update 8-25-2010

Gavin went to see Dr. R this morning. Here's the dime store version. Gavin can no longer take anti-psychotics safely. Dr. R isn't comfortable with Gavin being on them for right now at least. As we suspected Gavin is EXTREMELY manic and the current does of Lithium is working. He has bloodwork in the AM to get his levels and Dr. R will adjust as needed. The problem we face now is that Gavin will not be properly medicated. I don't know how we are going to survive this going forward. I'm greatly concerned about how this is going to effect everyone. School starts soon for him and I don't see that going well. That's the run down for where we are with Gavin at this point. I pray he…

0 Comments

Autistic Heartbreak

My heart has been broken tonight. We went to visit Elliott Richards new school this evening. Everything was went real well. Then we went into the classroom to meet the teachers. Most of his classmates were there. Everyone was playing together. Elliott Richard was off by himself and for the first time I saw him as an Autistic child. It was all I could do to keep from bursting into tears in front of him and everyone else. I tried so hard not to cry. I eventually had to go outside to get some air. I knew Elliott Richard had sensory and anxiety issues but for some reason I never saw what was behind them. If I am to be honest, ER is my weakness. I am the closest to…

2 Comments