It looks like the entire air intake needs replaced now. Can you say $1000.00.......I know officially HATE today...

Kids are asleep. Elliott woke up and came downstairs for a bit to snuggle and fall back asleep. Lizze and I were watching The Mummy and Emmett woke up do we are just going to call it a night. I hope tomorrow is a better day then today was. I hope Gavin has a good day and Elliott continues tovhave good days. I hope Emmett slows down a bit and Lizze doesn't hurt as much.

Today has just been a bad day. Everyone sees to be on edge. As Christmas gets closer everyone gets more and more anxious. I can't get anyone to listen or follow basic direction. If I had any hair left I would be riping it out. We need a break in the worst way. We need a chance to decompress and unwind. Honestly, we haven't had a night without the kids (with the exception of Lizze having surgery eariler this year) and that really wasn't a break. We were at the hospital by like 5am and the night was a rough one. Lizze and I are at our wits end. There really is no way to discribe all the ways I am exhausted. This week alone we have been to Akron…

We just got this letter in the mail a few minutes ago. It's from the Cleveland Clinic. It is the results from Gavin's genetic work up. Apparently, everything has come back normal (as seen in the picture). While it's good news it's also disappointing at the same time. That is because we are back to not knowing what's going on. If this had come back positive at least we would have something to go on. Now we are left with more questions then answers. Does that make sense? It would have also shed some light on his bizarre behaviors. We would have had some more insight into his inner workings. Maybe a better understanding of what makes him tick. Now we are back to square one. At least we can…

We were at the hospital very early this morning. Emmett was having a Barium study done. Basically he swallows this dye and they X-ray him as I passes through him. He hadn't had anything to eat or drink in like 12 hours so he was an extra special kind of grumpy today, and I don't blame him. Lizze and I didn't eat either so he wasn't hungry alone. We got there and it seemed like every kid was eating something and Emmett was screaming cause he was hungry and didn't understand. Then they put the bracelet on his ankle and he lost it. He screamed and screamed for the 20 minutes we waited to go back. He kept trying to pull it off. I know it's a sensory thing and…

We will be in Akron bright and early. Emmett has a study being done as part of the gastrointestinal stuff. Starting now he cannot have anything to eat or drink until after the tests are done. Try explaining that to a 2 year old, period, let alone a child on the spectrum that can't communicate. He will not understand and he will be very angry...

In the next 14 days Emmett is going to undergo a barium study. Basically he swallows barium and then he is x-ray'd to track the path it takes. They are looking for anything mechanically wrong hat could be causing the issues he's having. Next he is have an endoscopy. They said because he is having such unique problems and has had the issues for so long that this is the next logical step. They will go in and take biopsies and do further testing for celiac. They a concerned because he has intolerance to several different things that aren't common to have together. Part of the reason this is necessary is because Emmett can't communicate what is going on. He can't say "my tummy hurts". He won't even point to…

We are at Akron Childrens for Emmett, one of the many trips we have this week alone. Today is the Gastro.. Emmett is having xrays done to check his "poop level" in his colon. Then more bloodwork and then an endoscopy. They are suspecting celiac which is not something we wanted to hear. My mom has that and my grandmother and aunt had it as well. Not something pleasant to deal with for him or us on top of everything else he's dealing with. The fact that Emmett can't communicate just makes everything so much more complicated. He can't tell us what's going on so we have to guess. Because Emmett has had reflux since birth. The doc said 95% of kids with reflux out grow it by their 1st…