Friday’s news

Friday has finally arrived and is almost gone. Gavin was up all night vomiting and home today from school. I think it was something he ate that made him sick. Emmett went to the doctors this morning to be cleared for surgery on Monday. He isn't sick. It was confirmed to be stomach acid backing up him throat. Basically he is throwing up acid in the back of his throat. So Monday is a go but Emmett is absolutely miserable.  He will hve to go most of Monday without eating cause his surgery isn't scheduled till afternoon. I dropped the van off at the shop to get fixed but it ended up just sitting there all day. I'll hae to go pick it up cause we cannot be without a…

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Shattered

We went to have Emmett's speech and language evaluated today. It was not what I had expected. His speech score was 71 the average being 85-115 and his language score was 53 the average being 85-115. These are not good scores.  The recommendation was that he go to the Cleveland clinics early intervention preschool.  She said that the Autism scholarship would knock off $20,000 a year off tuition. That means that tuition is in excess of $20,000 + per year. It's also 1.5 hours away. I have know idea how we could pull that off.... We also learned today that most of what we thought was eye contact is him looking through us. She showed me what she was talking about and she was right. I just shattered right there.…

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Allergies, Allergies. and more ALLERGIES

Emmett just cannot catch a break. Not only is he allergic to milk and egg but also lactose and some other things we haven't identified yet. He goes on the 20th for his endoscopy. I called his gastro today and asked to get him back on his reflux meds. His reflux is so bad he is literally choking on stomach acid. He is screaming all the time. Probably because he is in pain. I get the point of withholding the meds but I don't want him in pain and he is in pain. At the same time I don't want a reason to repeat the enoscopy because the resuls were messed up cause he was on his reflux meds. I explained all of this of this to the nurse and…

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Thank You

I want to say a very humble Thank You to our friend out in Berleley CA. Thank you.. I'm at a loss for words... Thank you and Merry Christmas Lost and Tired

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Lost and Tired just got its 21,000th hit

It's been less then a year and I just got my 21,000th hit tonight. WOW... That's pretty good for a first time blogger I think. I am really proud of this blog and very grateful to all of you for your support. I hope this coming year brings continued success to the Lost and Tired blog and the Autism community. Keep sharing your stories. Thanks again and please keep spreading Autism Awareness........ Love you all, Lost and Tired

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Overwhelmed and underpaid

I went to the grocery store today before the snow hit just in case we got snowed in. I haven't been this overwhelmed in a while. This is the first time I was trying to find things Emmett could eat. I walked aimlessly up and down the aisles without a clue. We have been reading for days but still have no idea what to do. I found a few small things he could eat for now and will try to go back Monday armed with better intel.  Things are already getting bad cause Emmett won't deal with the other kids eating something he can't. I have been feeding everyone at different times and/or places so nothing is thrown in his face so to speak. Not an easy task. Gavin has…

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More diet issues

So Emmett was switched to soy milk today. The problem we have now is that he broke out with a rash on his face and had tummy troubles throughout the day. I'm confused as to why soy didn't show up on the tests. I have no idea what we are supposed to do and we don't see the doctor till next week. What really sucks is that I just went grocery shopping like a day before hearing about the test results. Lizze and I have been trying to figure out how to shop for food now. Milk and egg are in almost everything. I am completely overwhelmed with everything and have no idea how to cope with this stress.  Posted from WordPress for Android

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Autism and self injury: drawing the line

Gavin is escalating in the self-injury department. He had a really bad meltdown this afternoon and hit himself in the head over and over again. He also bit his own leg almost to the point of it bleeding. I told him that if this continues we will have no choice but to send him back to Akron. We have far to much going on to play games with whether or not he's doing this for attention. We will just assume that he has no control and get him help for the behavior. We have little choice as Elliott and Emmett both have picked up on the behavior. They both hit themselves when they get upset. We cannot allow this to continue. So we have drawn the line in the sand. If the behavior continues…

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