So the surgery debacle I thought I had resolved took a really bad turn tonight. Basically insurance refused to pay and now they said it was final. Because they said it was their final answer the hospital could work with us on payments because there was no chance of insurance picking up the tab. The lady in finacial at the hospital was going to talk to her supervisor and see what they could do and call me back. The only option they had for us was "many hundreds of dollars a month fr 18 months". That was the only option and she wouldn't give us any more detail then that. She was supposed to check for a better option and cal right back. She said the surgery was still on…

Alright.. The surgery is a go for Friday, however, insurance isn't. We will have to appeal it later but she needs this done. We will have to use tax return to cover a portion of the fee's so we can be set up on a payment plan. This is an acceptable outcome. I wanted to do whatever we had to in order to get her relief. No one should  have to live in pain when it can be helped. We have 3 doctors and all agree it is medically necessary and there is NO alternatives. Dr. D is going to continue to fight along side the Hospital to make insurance covers this "MEDICALLY NECESSARY" procedure. However, at least I was able to work things out so that she can have…

It's been a few days since I really updated anything. So here it goes. Gavin is recovered from his spinal tap. No problems as of today. They can happen at any point within the first 5-7 days we were told by the doctor. That said, Gavin is basically completely psychotic. He has lost touch with reality and movements have also gotten worse. Behaviorally he is doing ok. He is hurting himself and currently has a big scratch on his forehead and a bruise on his cheek from hitting and scratching himself when he gets angry. We have not heard back from Dr. R about anti-psychotics. So until we do it's a waiting game. A very long and exhausting waiting game. Lizze came home on Sunday night. We realized that she was…

We got home around 4 pm today. Gavin did great but will likely be down the rest of the week. We won't have the results for amonth or so. Completely exhausted. Both our phones died and were to tired to even stick them on the charger. So sorry if we missed any calls... I will catch everyone up in the morning...we are ok.. thanks for the prayers.... Posted from WordPress for Android

Posted from WordPress for Android

We are here and Gavin is checked in. Please say a prayer.... Posted from WordPress for Android

Posted from WordPress for Android

We are here and Gavin is checked in. Please say a prayer.... Posted from WordPress for Android