As you all know Lizze's surgery was canceled because the "Medical Director" of our insurance company feels Lizze doesn't need the surgery. He or she should not be in the position to micro manage the wellbeing of someone from their lush office and cushy leather desk chair. Lizze's doctor and 3 or 4 other doctors ALL agree that this IS MEDICALLY NECESSARY. They have ACTUALLY talked to her in person. They have ACTUALLY examined her and determined the ONLY course of action is the surgery. Lizze is currently still doubled over in pain because she still has the uterus that was supposed to be GONE two days ago. It's bad enough when this happens to the average person but Lizze isn't the average person, She is in pain constantly and…

Elliott is constantly being assulted by Emmett John. I have no clue how to stop it.....or for that matter what is causing it.

Emmett and I made a trip to McDonalds between speech and school. He got an apple juice daddy got a milk shake. Emmett feel asleep in mid-sip. He was quite tired after the evaluation. On a side note, that was the last time that door on the van worked....

Emmett had his 1st day of speech the other day. His evaluation went well. However, he is functioning at a 25%+ deficit.. Basically he's significantly struggling with speech and language. No we just have to wait for insurance to approve the sessions.

The explanation we received is that the surgery was over $12,000.00 and they didn't want us to incur the cost if they could convince the insurance company to cover it. It would otherwise cost us almost $700/month. Dr.D's office manager said she told Lizze it was canceled but we didn't understand. We were told it was up to the hospital. At that point the hospital said it was still on and only canceled it after we spoke with them. We were never notified by the hospital that it was canceled. Either way it sucks and will have a HUGE negative impact on our family. I wish money wasn't a deciding factor for things like this. I understand but damn it sucks..... I wish my hands weren't always tied and I…

So the surgery debacle I thought I had resolved took a really bad turn tonight. Basically insurance refused to pay and now they said it was final. Because they said it was their final answer the hospital could work with us on payments because there was no chance of insurance picking up the tab. The lady in finacial at the hospital was going to talk to her supervisor and see what they could do and call me back. The only option they had for us was "many hundreds of dollars a month fr 18 months". That was the only option and she wouldn't give us any more detail then that. She was supposed to check for a better option and cal right back. She said the surgery was still on…

Alright.. The surgery is a go for Friday, however, insurance isn't. We will have to appeal it later but she needs this done. We will have to use tax return to cover a portion of the fee's so we can be set up on a payment plan. This is an acceptable outcome. I wanted to do whatever we had to in order to get her relief. No one should  have to live in pain when it can be helped. We have 3 doctors and all agree it is medically necessary and there is NO alternatives. Dr. D is going to continue to fight along side the Hospital to make insurance covers this "MEDICALLY NECESSARY" procedure. However, at least I was able to work things out so that she can have…

It's been a few days since I really updated anything. So here it goes. Gavin is recovered from his spinal tap. No problems as of today. They can happen at any point within the first 5-7 days we were told by the doctor. That said, Gavin is basically completely psychotic. He has lost touch with reality and movements have also gotten worse. Behaviorally he is doing ok. He is hurting himself and currently has a big scratch on his forehead and a bruise on his cheek from hitting and scratching himself when he gets angry. We have not heard back from Dr. R about anti-psychotics. So until we do it's a waiting game. A very long and exhausting waiting game. Lizze came home on Sunday night. We realized that she was…