As if today wasn't bad enough we met with "we need you to go to out patient lab and have blood work done. Guess how much he is going to like that. I hate this day and wish it was over......
I woke up this morning with the knowledge that it may be the last morning I wake up not knowing for sure where Emmett falls on the spectrum. It's like a nightmare you can't wake up from. I was putting Emmett to bed last night. I found myself asking him to fight. Actually, I was more begging him to fight. I begged him not to slip away and to please still be "there" in the morning. I think that's what scares me the most. With Gavin we simply didn't know what was about to happen. I have so many regrets. With Emmett I don't want to make the same mistakes. I know the risks now and don't want to take 1 sec for granted. I want this time to be…
My friend Stuart Duncan had a great idea the other day. Why not open up the blog to questions... What better way to spread Awareness then dispel any misconceptions about Autism and answer any questions anyone might have about raising children on the spectrum. So here you go. I will take questions about anything pertaining to the topics discuss on this blog and answering them as honestly as I can. What to know more about me, just ask. Want to know what raising an Autistic child is like , just ask. Maybe this will help to generate further dialog and promote Autism education and awareness...
This had slipped through cracks this was a shot of Gavin in recovery......
The Lost and Tired blog has seen over 15,000 hits so far this year. That's right 15,000 hits in the past 24 days.. Thank you for reading our story and traveling with us on our journey. Thank you for helping spread Autism Awareness.
At 4:15pm tomorrow afternoon we will find out the results of Emmett's ADOS testing. I have come to grips with Autism being the most likely diagnosis. Despite coming to "grips" with it I don't know how I will react. Actually that's not true, I do know how I will react. I will break down right there. I'll fight it for as long as I can so Emmett doesn't get stressed out but I will lose the fight and the tears will fall. I can't see any other possible outcome. He is clearly Autistic. My best guess would be that he has Aspergers at the very least. He is basically non-verbal and significantly developmentally delayed. These are just the facts...... It's really hard to tell the level of functioning when he…
I spoke with our Aultman hospital about what was going on and asked if they would be willing to work with me on payments. I explained what Mercy had quoted about $12,000 for the surgery and about $700/month in payments if we self pay. The patient account rep I spoke with said that a bill that size would about $100/month as far as payments are concerned. So now I have Dr. D's office calling to check into if. If everything goes well then we may be able to pull this off. They said they don't understand why insurance wouldn't cover it but that they would try to bill it to them any way. I should hear something back later this afternoon as to what is going on..... I just can't…