Survival of a special needs family: A work in progress….

Raising a family with special needs is never easy. In fact it can feel like and often be an impossible task. I find myself in that very position every single day. I know some of you out there are in a similar boat. Here is some insight into how I attempt to deal with this. One of the biggest worries I have is funding to cover everything we have going on (including Lizze's pending surgery). So I have been kicking around some ideas. Basically we survive (and I use that term loosely) right now on residual income form our contracting business I can no longer work and the computer repairs that come in from time to time. We always seem to manager but the stress surrounding this aspect of our lives is enormous for…

0 Comments

“Voice4u” Free Give-A-Way!!!!!

I received a copy of Voice4U (from the developer) to give away to one of my readers.. This version is designed for Apple iPod/iPhone or iPad. I haven't decided if I will do that here or at Daily Mommy Survival yet. I own this for Android and it is AMAZING.......  Details to come VERY SOON.......              Anyone Interested? UPDATE: THE DRAWING WILL BE TAKING PLACE OVER AT DAILY MOMMY SURVIVAL. UPDATE: The winner was announced today at 5:30pm. See the above link for details....

0 Comments

Processing…..The first 24 hours…

So after a long, restless nights sleep (especially for Lizze) I have begun to process everything. The first things that pop into my mind is how are we going to survive this physically, emotionally and financially. We're barely surviving as it is. I know nothing fundamentally has changed but the dynamic has. Before today we had hope (admittedly little, but hope none-the-less) that Emmett would pull out of this or just start talking. I was hoping, praying that he was just going to start talking late little happens sometimes. I was hoping that if we planned for the worst and hoped for the best it we would come out on top. Part of me knew we wouldn't but that didn't matter. Now everything has changed. Where as before we were in "Let's figure out…

5 Comments

Just got back…….

Today has to be the worst day I have had since Elliott was in the NICU. We met with the doctor and she confirmed our fears... I can't tell you how hard it is to even type right now. I had to hold it together so I could drive home. Emmett is not "Non-verbal" Autistic but he isn't Aspergers either.  Basically he it's better then non-verbal but worse than Aspergers.  To be honest I had been thinking Aspergers but he is far to delayed developmentally she said. He isn't completely non-verbal as he has a few words. She said he makes eye contact but won't maintain it. So he is Autistic... I somehow thought it would be easier to knowing for sure but it isn't..... In truth, right now I…

3 Comments

Regrets: An honesty post

I woke up this morning with the knowledge that it may be the last morning I wake up not knowing for sure where Emmett falls on the spectrum. It's like a nightmare you can't wake up from. I was putting Emmett to bed last night. I found myself asking him to fight. Actually, I was more begging him to fight. I begged him not to slip away and to please still be "there" in the morning. I think that's what scares me the most. With Gavin we simply didn't know what was about to happen. I have so many regrets. With Emmett I don't want to make the same mistakes. I know the risks now and don't want to take 1 sec for granted. I want this time to be…

5 Comments