Audio Fixed This is a little video montage I put together for Elliott. These are all clips taken from his birth up to his 1st birthday. We are grateful everyday that we didn't lose him.... [youtube]http://www.youtube.com/watch?v=BOn_xfeu8E8[/youtube]
Elliott spent the better part of a month in the NICU. Both his lungs collapsed and he was very sick. He almost died. It was the scariest time of my life. I'm so grateful for him everyday of my life..
It's been a while since I have just update everyone as to how everything is going. Honestly, since the "bare handed man" post I have just been struggling to write anything meaningful. There are a few reasons for that but the biggest is just that my thoughts are a mess. I have so much I want to say but just can't string the words together lately. So if you read this please don't expect anything "profound" as you will most likely come up empty handed. Instead I thought I would just try to share what my life is currently like in a very honest fashion. I know it's depressing to read but I just think it's important to show the world what our lives with Autism are like. This is…
If you ever get the “privilege” of knowing a special needs family you should feel honored. I say “privilege” because that’s exactly what it is, a privilege not a “right”.
So Elliott and Emmett both are still hanging on to the fever.. Gavin seems to be better...at least for now. Elliott and Emmett will both be home from school AGAIN tomorrow. We'll see how Gavin's doing in the morning. This always drags on. They seem to just keep passing the germs back and forth..... These guys are even more challenging when they are sick...if you can believe that.
I'm a huge believer in using technology to help make our lives more manageable. When we got our tax return this year one of the things that we did was try to build a crash room. That didn't go very well. When our bouncey house died we were unable to replace it due to being discontinued. The rest of the crash room pretty much fell apart after that. We wanted something to capture the kids attention but at the same time keep them physically active. Our kids LOVE video games. However, just because they LOVE them doesn't mean they are able to play them. In Gavin's case he is really good but gets REALLY frustrated and meltsdown. Elliott's current obsession is video games. We do our best to limit…
Gavin has been doing pretty well especially for the past month or so. He was finally able to be put back on the anti-psychotics after his LP at the Cleveland Clinic. However, the past few days Gavin has begun to struggle again. We are seeing multiple meltdowns per day again. He has also become very disorganized both mentally and physically. He no longer keeps his room clean and organized like he has obsessively been doing for the past few months. He also can't seem to remember things. Gavin's back to hitting himself in the head as well. Today when I told him he had a fever he melted down....like he had done something wrong. He has started lieing to us but he can't keep things straight in his head so he…