Elliott is back up and off to school this morning. I love him dearly but Daddy needed a break. However, that break will have to wait because Emmett spiked a fever this morning. This really sucks for obvious reasons but also because hbe missed speech and school today. Not to mention we'll have to reschedule Case Western....again. This is already a long week.... Posted via midNIGHT powered Epic 4G by lost and tired
Elliott has been sick for over a week now. We are going to have to get him back in to the doctors on Monday. Hi cough is HORRIBLE and he's not sleeping.... Let me preface this by saying I love Elliott Richard with ALL my heart... But he NEEDS to go bck to school before daddy loses what's left of his mind. It's not looking promising for Monday. If anything he's getting worse. Posted via midNIGHT powered Epic 4G by lost and tired
I've spoken many times about the sacrifices we make as special needs parents. There is however a price we pay as well. Lizze takes a great deal of abuse from Emmett John. It's demoralizing and overwhelming to say the very least... Posted via midNIGHT powered Epic 4G by lost and tired
Elliott was awake for almost 36 hours. He just felt so bad he couldn't sleep. After the return trip to the doctors and an antibiotic and some cough medicine later, he finally fell asleep. It killed me to see him like that..... Now he just looks peaceful.... Posted via midNIGHT powered Epic 4G by lost and tired
The special needs family is a complex and VERY fragile entity. A special needs family faces challenges every minute of every day that most people won't face in the entire course of their lives. Because of these challenges many friends and even family will leave the special needs family behind. This happens because those friends and family aren't stong enough to put the needs of the family over their own personal needs. This does not have to happen but it does. The sad truth is, if you ask, most special needs families will tell you they have lost friends and/or family over the years. This is the topic of discussion today. I want everyone to understand what goes on behind the scenes so maybe these losses can be avoided.. Here…
Any child getting sick is a rought situation. An Autistic child getting sick, or in my case 2 of my 3 Autistic children getting sick is a nightmare. Elliott just spikd a fever of 102F and pretty worse for wear. Emmett has been super clingy today which is his way of saying he doesn't feel well. We just spent 25 minutes trying to get Elliott to take his antibiotics and motrin. He has a "thing" with colors and the antibiotics are white. They are flavored but not dyed. Plus he's coughing so badly that everything that goes in his mouth comes shooting right back out. You know how when you get sick, your head hurts? Maybe the lights hurt your eyes or your clothes hurt your skin? Imagine having major…
We have begun to enter crisis mode with Gavin once again. Gavin has become very unstable. He is experiencing auditory and visual hulucinations again. We have a call into his doctor but I'm wndering if the best thing would be Akron Children's Hospital. He needs evaluated and medically stablized ASAP. We just had another meltdown that wouldn't have happened a few weeks ago. Did I say long weekend already? Posted via midNIGHT powered Epic 4G by lost and tired
It's now day 6 and Elliott is still sick and actually getting worse. We just got back from the doctors and he has bronchitis. He hasn't slept in over 40 hours and his fever is back.... Can you say "long weekend"........