No sleep in my future….

I went to bed after updating all my threads and answering as many questions as I could. I get upstairs to find Emmett just sitting up in bed in a daze. I go to tuck him back in and I realize he's burning up. Took his temp and he was approaching 104F.. That's not good. So we got some meds on board and then got him in the tub to try and break the fever. He played for a bit and now laying down again. Hopefully he will be able to go to sleep. I'm soooooo tired.

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And the other shoe falls…again

Tonight just keeps getting worse. Gavin has now puked ALL OVER the floor in his room. He is definatly NOT feeling good. The problem with Gavin and vomitting (besides the obvious) is that we never know why? Because of his many....um...complications...we just never know if it was caused by eating something he shouldn't have. That's just one more thing about being a special needs parent that most people wouldn't know about. On a disturbing side note, I want to give a shout out to Maggie, THANKS for the clean up. Emmett is currently sick as well. Case Western is officially canceled for tomorrow along with Gavin's chances of going to school. I was looking forward to a nice (semi-relaxing) quiet night. Now it will be filled with Vicks VapoRub under…

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The agenda…

This is a busy week. We have many appointments to be at. Case Western University is coming in the morning to interview us and administer another ADOS for Emmett. We are taking part in a study on Autism and a new intervention technique that holds much promise. This was all supposed to happen a while ago but with Lizze's surgery and the boys...well everything, its been one conflict after another. We meet at 10am tomorrow. They are coming out to our house, which saves us a drive to Cleveland. Lizze also has to meet with Dr. D for the follow up from surgery this week as well. Not quite sure how that's going to go. We did get the van back today and it appears to actually be working right....…

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Lizze is still recovering…slowly

Lizze fell asleep on the couch last night after a rough day. She's in a lot of pain all the time and it's exhausting. Plus it didn't help that I was using the TV to work on my next Android release. It's relaxing for me but clearly more so for her :-) Posted via midNIGHT powered Epic 4G by lost and tired

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Elliott is up and Emmett is down..

Elliott is back up and off to school this morning. I love him dearly but Daddy needed a break. However, that break will have to wait because Emmett spiked a fever this morning. This really sucks for obvious reasons but also because hbe missed speech and school today. Not to mention we'll have to reschedule Case Western....again. This is already a long week.... Posted via midNIGHT powered Epic 4G by lost and tired

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Elliott is STILL sick….sigh

Elliott has been sick for over a week now. We are going to have to get him back in to the doctors on Monday. Hi cough is HORRIBLE and he's not sleeping.... Let me preface this by saying I love Elliott Richard with ALL my heart... But he NEEDS to go bck to school before daddy loses what's left of his mind. It's not looking promising for Monday. If anything he's getting worse. Posted via midNIGHT powered Epic 4G by lost and tired

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The price of special needs parenting….

I've spoken many times about the sacrifices we make as special needs parents. There is however a price we pay as well. Lizze takes a great deal of abuse from Emmett John. It's demoralizing and overwhelming to say the very least... Posted via midNIGHT powered Epic 4G by lost and tired

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Elliott FINALLY sleeps after 36 hours

Elliott was awake for almost 36 hours. He just felt so bad he couldn't sleep. After the return trip to the doctors and an antibiotic and some cough medicine later, he finally fell asleep. It killed me to see him like that..... Now he just looks peaceful.... Posted via midNIGHT powered Epic 4G by lost and tired

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