We heard back from the pediatricians office. Dr. H is not comfortable in this area and wants Gavin seen in Cleveland. However, I don't think Gavin will handle the 1.5 hours ride so we are diverting to Akron Children's Hospital. They are calling this in ahead of time so they are expecting us. The concern is that we don't know what's causing the vomiting right now. It's happening to often to be the flu and Gavin "claims" he has eaten any non food items. Maybe it's just the flu "again" but we don't so we don't take any chances. Please say a prayer that it's just a bug and not anything else..... -lost and tired

Getting the kids ready for school Gavin was the first ready. He was walking out of his room and he puked ALL OVER the hallway. I don't have any idea what is going on. He's doing this more and more often. He's never had food allergies before that made him sick. This happened last week and then again this week. He says he hasn't eaten anything that wasn't food but I don't know anymore. If he did my guess is he wouldn't tell us..... We're going to have to get him in to be seen today...and we already have to be in to many different places today... Update: On the phone with the doctors office

Dr. R is out of town on vacation this week. We met with his main nurse practitioner. Gavin is clearly delusional there is no arguing that. What she thinks is happening is the anti-psychotics haven't had enough time to work. We just increased the dose about a week ago. Gavin typically responds quickly to medication increases or changes but maybe it's just taking longer. She thinks that we are just seeing the schizoaffective disorder right now because it's not properly medicated.  Hence the "seeing things" that aren't there.   She could not advise one way or the other as to whether or not the Cleveland Clinic is needed because she hasn't seen Gavin since last year. She also doesn't want to mess with his medications until Dr. R gets back because of the increased risk…

Something Lizze and I both failed to consider is whether or not Gavin is suffering from delirium. When he was at the Cleveland Clinic last year that's what they diagnosed him with. They told us it's a life threatening condition.  I don't know how we overlooked that. We got caught up and focused on the hallucinations and wanting to stop those for him that we failed to see the larger picture. Gavin sees someone at Dr. R's office today and we will figure out what needs to happen. As much as I mentally prepared for this conversation I'm not ready to have it. Putting aside for a second what Gavin may need, what about the rest of the family. How will we survive with this added pressure? How can we…

Here are a few Gavin's latest creations. I promised I would take pictures and post them for him........ :-)

I never in a million years thought I would EVER be having this conversation with one of my kids. Does this sounds familiar at all to anyone? This is NOT his imagination. This is what a psychotic episode is like. Hopefully this will help Dr. R to decide what we need to do. If anyone has seen this type of behavior please let me know. I'm at a complete loss. This is what has happened in the past except now he seems to be able to articulate the experience better. To me this is another psychotic break, meaning he has lost touch with reality. He did go to sleep after his Ativan and is resting for now. Please know that I was flying blind here. I didn't know what to…

Emmett and I watching Ponyo on the couch.... A rare moment of "sorta" peace and quiet....

One of the things we struggle with is getting the kids to eat healthier. They each have texture and or color issues with food. I have found that allowing them to make a smoothie seems to "override" some of the sensory issues. I can sneak all kinds of veggies in there. Anyone else have success with this???