I'll be real honest, I haven't been this stressed out in a VERY long time. I have a post I want to write to give people a better idea of where exactly I am right now. It has to do with the level of responsibility I carry and how that impacts EVERYTHING. I'm hoping that writing that post will allow me to unload some of the weight for a bit. Maybe shake these headaches as well. All I know is, I can't survive with the amount of stress I experience anymore.  Something has to give.... -LT

It's been a really long, very bad day. I wanted to post more but I just don't have the energy.... Anyway, we got a call today from Case Western Reserve. We are back in Cleveland on Friday for more tests. It's a last minute "thing" I guess. I will helps us to have a better understanding of what makes him tick, so it will be worth the drive. I just have been getting these "headaches" lately. It's stress related but it makes it hard for me to see out of my left eye. The more stressed out I get the worse it gets. When I'm relaxed it gets better. Problem is I can never relax. I need to though if I'm going drive to Cleveland on Friday. I need to…

We got home a few hours ago. Basically they said that Gavin is extremely....um..backed up. That's what the vomiting is from. We are basically dealing with schizoaffective disorder that isn't properly managed or not responding to meds. On top of that we have all the complications of Autism. He's medically stable and the was the major concern. Now we wait to see if he responds to the meds.... Thanks for all the prayers and thoughts.....

I getting tired and hungry. We have been here for about 7 hours now and I haven't eaten since about this time yesterday. Trying to get Gavin resting a bit. Lizze is sleeping in her chair right now. Hopefully, we can swing by and grab something to eat if we ever get out of here. These plastic chairs are NOT good for someone with major back problems, that's for sure. I don't know what's taking so long.....

Gavin appears to be medically stable. It looks like we ARE NOT dealing with delirium. As Dr. R's nurse said yesterday we are probably dealing with the "schizo" part of schizoaffective disorder. Which is a problem still but not a life threat. So they are speaking with psych right now. They have no room at Akron so if he were admitted it would be either Cleveland or Pittsburgh. I'm thinking we can manage things for now if that is in fact what we are dealing with...

Everything came back and ok. Gavin is VERY constipated and that could cause the nausea. It not bad enough that it's completely obstructed but we need to address it none-the-less. Now we are being referred to psych. Someone is coming to interview us.......again. Not sure where that will lead but we need to explore our options to get him relief. That's it so far... Thanks for keeping him in your thoughts.

Wells just got back from X-ray. I try to take pics when I'm allowed or able to. It helps Gavin to become fimiliar with the process and Elliott to be less affraid of Gavin going of to the hospital. Elliott worries a lot when he knows Gavin's in the hospital. I can show him the random pictures and he sees Gavin's OK and feel better. Just a little trick I learned over the past 6 hospital stays... I blog about it cause it keeps me distracted just enough to stay "centered" and focused.... Also it just helps to show more about what families like mine have to go through in order to care for our special needs kids......

The tests are about to begin we need to rule out whatever we can up front. So blood work for infections, illness and other things that could cause vomiting. We are going to rule out toxicity as well due to the history of PICA. It's most likely going to be a VERY long day but hopefully it will bring answers and some much needed peace of mind........ Also Gavin didn't even flinch at the notion of getting a blood drawl. That is VERY unusual as you may remember Gavin's history when it comes to bloodwork.. I don't know whether to be proud or concerned...if that makes sense.