Gavin appears to be medically stable. It looks like we ARE NOT dealing with delirium. As Dr. R's nurse said yesterday we are probably dealing with the "schizo" part of schizoaffective disorder. Which is a problem still but not a life threat. So they are speaking with psych right now. They have no room at Akron so if he were admitted it would be either Cleveland or Pittsburgh. I'm thinking we can manage things for now if that is in fact what we are dealing with...

Everything came back and ok. Gavin is VERY constipated and that could cause the nausea. It not bad enough that it's completely obstructed but we need to address it none-the-less. Now we are being referred to psych. Someone is coming to interview us.......again. Not sure where that will lead but we need to explore our options to get him relief. That's it so far... Thanks for keeping him in your thoughts.

Wells just got back from X-ray. I try to take pics when I'm allowed or able to. It helps Gavin to become fimiliar with the process and Elliott to be less affraid of Gavin going of to the hospital. Elliott worries a lot when he knows Gavin's in the hospital. I can show him the random pictures and he sees Gavin's OK and feel better. Just a little trick I learned over the past 6 hospital stays... I blog about it cause it keeps me distracted just enough to stay "centered" and focused.... Also it just helps to show more about what families like mine have to go through in order to care for our special needs kids......

The tests are about to begin we need to rule out whatever we can up front. So blood work for infections, illness and other things that could cause vomiting. We are going to rule out toxicity as well due to the history of PICA. It's most likely going to be a VERY long day but hopefully it will bring answers and some much needed peace of mind........ Also Gavin didn't even flinch at the notion of getting a blood drawl. That is VERY unusual as you may remember Gavin's history when it comes to bloodwork.. I don't know whether to be proud or concerned...if that makes sense.

We heard back from the pediatricians office. Dr. H is not comfortable in this area and wants Gavin seen in Cleveland. However, I don't think Gavin will handle the 1.5 hours ride so we are diverting to Akron Children's Hospital. They are calling this in ahead of time so they are expecting us. The concern is that we don't know what's causing the vomiting right now. It's happening to often to be the flu and Gavin "claims" he has eaten any non food items. Maybe it's just the flu "again" but we don't so we don't take any chances. Please say a prayer that it's just a bug and not anything else..... -lost and tired

Getting the kids ready for school Gavin was the first ready. He was walking out of his room and he puked ALL OVER the hallway. I don't have any idea what is going on. He's doing this more and more often. He's never had food allergies before that made him sick. This happened last week and then again this week. He says he hasn't eaten anything that wasn't food but I don't know anymore. If he did my guess is he wouldn't tell us..... We're going to have to get him in to be seen today...and we already have to be in to many different places today... Update: On the phone with the doctors office

Dr. R is out of town on vacation this week. We met with his main nurse practitioner. Gavin is clearly delusional there is no arguing that. What she thinks is happening is the anti-psychotics haven't had enough time to work. We just increased the dose about a week ago. Gavin typically responds quickly to medication increases or changes but maybe it's just taking longer. She thinks that we are just seeing the schizoaffective disorder right now because it's not properly medicated.  Hence the "seeing things" that aren't there.   She could not advise one way or the other as to whether or not the Cleveland Clinic is needed because she hasn't seen Gavin since last year. She also doesn't want to mess with his medications until Dr. R gets back because of the increased risk…

Something Lizze and I both failed to consider is whether or not Gavin is suffering from delirium. When he was at the Cleveland Clinic last year that's what they diagnosed him with. They told us it's a life threatening condition.  I don't know how we overlooked that. We got caught up and focused on the hallucinations and wanting to stop those for him that we failed to see the larger picture. Gavin sees someone at Dr. R's office today and we will figure out what needs to happen. As much as I mentally prepared for this conversation I'm not ready to have it. Putting aside for a second what Gavin may need, what about the rest of the family. How will we survive with this added pressure? How can we…